A scoping review of transition interventions for young adults with sickle cell disease
| Autor: | Cecilia Valrie, Adrienne Viola, Jelaina Shipman, Ellen Brooks, Jerlym S. Porter |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
Gerontology
Adult Transition to Adult Care Adolescent Evaluation data Psychological intervention Patient characteristics Disease Anemia Sickle Cell Article law.invention 03 medical and health sciences Young Adult 0302 clinical medicine Randomized controlled trial law medicine Humans Attrition Young adult Single institution Child business.industry Hematology medicine.disease Oncology 030220 oncology & carcinogenesis Pediatrics Perinatology and Child Health business 030215 immunology |
| Zdroj: | Pediatr Blood Cancer |
| ISSN: | 1545-5017 |
| Popis: | Standardized programming for individuals with sickle cell disease (SCD) transitioning from pediatric to adult-centered care does not currently exist, resulting in high rates of mortality and morbidity. This scoping review examines and evaluates the current literature on SCD transition programs and interventions. Eligible studies described an existing program for individuals with SCD aged 12-29 years preparing to transition. The Evidence Project risk-of-bias tool was used to assess article quality. We identified 30 eligible articles, of which, only two were randomized controlled trials. Many studies have incomplete reports of feasibility information, such as completion rates, patient characteristics, and attrition; all studies were limited to a single institution; and most studies were rated high for risk of bias. Progress has been made in designing and gathering initial evaluation data for SCD transition programs; however, there is a need for higher quality studies, consistent assessment, and better dissemination of programs. |
| Databáze: | OpenAIRE |
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