A longitudinal cohort study of symptoms and other concerns among Nigerian people with stages 3–5 chronic kidney diseases: study protocol
| Autor: | T I Umeizudike, Nasur Buyinza, Raphael E. Ogbolu, Katherine Bristowe, Richard Harding, Eve Namisango, Olatunji F. Aina, Deokhee Yi, Rotimi W Buraimoh, Barbara Mutedzi, Andrew T Olagunju, Fliss E M Murtagh, Olagoke Korede Ale, Julia Downing, Jonathan Bayuo, Kennedy Nkhoma, Babatunde Fadipe, Joseph D. Adeyemi |
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| Rok vydání: | 2019 |
| Předmět: |
Male
Gerontology Biopsychosocial model Palliative care Nigeria Cohort Studies Social support Quality of life Humans Medicine Longitudinal Studies Advanced and Specialized Nursing business.industry Nigerians Palliative Care medicine.disease Anesthesiology and Pain Medicine Research Design Quality of Life Kidney Failure Chronic Anxiety Female Observational study medicine.symptom business Kidney disease |
| Zdroj: | Annals of Palliative Medicine. 8:190-198 |
| ISSN: | 2224-5839 2224-5820 |
| Popis: | Background: The burden of symptoms and other concerns in chronic kidney disease (CKD) is known to be high, adversely affecting the quality of life of the growing number of those with this condition in developing countries. In this paper, we describe the protocol of a longitudinal observational study among people living with CKD. The study is developed to assess the bio-psychosocial factors associated with palliative care symptoms and concerns, and pattern of health services usage among Nigerians with stages 3–5 CKD. The overall objective is to establish the evidence-base for advocacy and policy formulation, treatment guidelines, care and services, and future clinical trial studies. Methods: This is a multi-center study to investigate the longitudinal course of symptoms and other concerns among patients with stages 3–5 CKD in Nigeria. Interviewer administered and self-report measures at baseline (T0) and 3-month (T1) address socio-demographic characteristics, clinical-illness related information, palliative care-related symptoms and other concerns, pattern of formal or informal service usage, and bio psychosocial measures including estimated glomerular filtration rate (eGFR), anxiety, depression, quality of life, functioning, social support and spiritual wellbeing. Discussion: This study represents the first longitudinal investigation of palliative care symptoms and concerns among people with CKD in Nigeria. It includes early stages of CKD in compliance with best practices, and a comprehensive range of bio-psychosocial outcomes to understand how these factors are associated with symptoms. This study will provide evidence for how best to integrate palliative care into management of CKD to improve care and quality of life of people with CKD. The study team welcomes collaborations with both national and international researchers. |
| Databáze: | OpenAIRE |
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