Bilateral vestibulopathy patients' perspectives on vestibular implant treatment: a qualitative study

Autor: Lisa van Stiphout, Florence Lucieer, Nils Guinand, Angélica Pérez Fornos, Maurice van de Berg, Vincent Van Rompaey, Josine Widdershoven, Herman Kingma, Manuela Joore, Raymond van de Berg
Přispěvatelé: RS: MHeNs - R1 - Cognitive Neuropsychiatry and Clinical Neuroscience, KNO, MUMC+: MA Keel Neus Oorheelkunde (9), RS: MHeNs - R3 - Neuroscience, MUMC+: MA Vestibulogie (9), RS: CAPHRI - R2 - Creating Value-Based Health Care, MUMC+: MA Audiologisch Centrum Maastricht (9)
Rok vydání: 2020
Předmět:
Zdroj: Journal of neurology (2021)
Journal of Neurology, 269(10), 5249-5257. Springer
Journal of neurology
ISSN: 1432-1459
0340-5354
Popis: Objectives The aim of this study was to explore expectations of patients with bilateral vestibulopathy regarding vestibular implant treatment. This could advance the definition of recommendations for future core outcome sets of vestibular implantation and help to determine on which characteristics of bilateral vestibulopathy future vestibular implant research should focus. Methods Semi-structured interviews were conducted with 50 patients diagnosed with bilateral vestibulopathy at Maastricht UMC + . Interviews followed a semi-structured interview guide and were recorded and transcribed. Transcripts were analyzed thematically by two independent researchers. A consensus meeting took place to produce a joint interpretation for greater dimensionality and to confirm key themes. Results Overall, patient expectations centralized around three key themes: (physical) symptom reduction, functions and activities, and quality of life. These themes appeared to be interrelated. Patient expectations focused on the activity walking (in a straight line), reducing the symptom oscillopsia and being able to live the life they had before bilateral vestibulopathy developed. In general, patients indicated to be satisfied with small improvements. Conclusion This study demonstrated that patient expectations regarding a vestibular implant focus on three key themes: symptom reduction, functions and activities, and quality of life. These themes closely match the functional improvements shown in recent vestibular implantation research. The results of this study provide a clear guideline from the patient perspective on which characteristics of bilateral vestibulopathy, future vestibular implant research should focus. Trial registration NL52768.068.15/METC
Databáze: OpenAIRE
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