Negotiating role management through everyday activities: narratives in action of two stroke survivors and their spouses
| Autor: | Edith H. C. Cup, M.W.G. Nijhuis-van der Sanden, Staffan Josephsson, B.J.M. de Swart, Jana Zajec, Ton Satink |
|---|---|
| Rok vydání: | 2016 |
| Předmět: |
Male
030506 rehabilitation Activities of daily living Context (language use) Developmental psychology Healthcare improvement science Radboud Institute for Health Sciences [Radboudumc 18] Social Skills 03 medical and health sciences 0302 clinical medicine Social skills Activities of Daily Living Adaptation Psychological medicine Humans Narrative Spouses Stroke Aged Narration Self-management Negotiating Rehabilitation Role Stroke Rehabilitation medicine.disease Disorders of movement Donders Center for Medical Neuroscience [Radboudumc 3] humanities Self Care Action (philosophy) Spouse Female 0305 other medical science Psychology 030217 neurology & neurosurgery Clinical psychology |
| Zdroj: | Disability and Rehabilitation, 38, 24, pp. 2354-64 Disability and Rehabilitation, 38, 2354-64 Disability and Rehabilitation, 38, 2354-2364 |
| ISSN: | 0963-8288 |
| Popis: | Item does not contain fulltext PURPOSE: To manage social roles is a challenging part of self-management post-stroke. This study explored how stroke survivors act as role managers with their spouses in the context of everyday activities. METHOD: Two stroke survivors with a first time stroke living at home with a spouse were included. Data were generated through participant observations at their own environment at 3, 6, 9, 15 and 21 months post-discharge. The narrative analysis focused on the actions of participants. RESULTS: Daily activities can be understood as an arena where role management and a meaningful live is negotiated and co-constructed with others. Everyday activities gave stroke survivors and their spouses insight into stroke survivors' capacities in daily situations. This was sometimes empowering, and other times conflicting when a spouse had negative perceptions of the abilities of the stroke survivors. CONCLUSION: The findings add to the current understanding of self-management and role management with regard to how these are situated in everyday activities. Daily activities can help both spouses to reflect and understand about self-management, role management and comanagement in daily life. Moreover, observing stroke survivors in everyday situations provides professionals with concrete pictures of stroke survivors' performance and self-management in interaction with their spouses. Implications for Rehabilitation Self-management is a dynamic process in which individuals actively manage a chronic condition and finally live a meaningful life with a long-term chronic condition; self-management can be divided into medical, role, and emotional management; comanagement is when individuals activate resources and use the capacities of other persons to manage a situation together. Self-management is situated in everyday activities. Everyday activities give stroke survivors and their partners impressions about stroke survivors' self-management abilities post-stroke in an everyday context. Everyday activities give stroke survivors and their partners an arena where role management and a meaningful life are negotiated and coconstructed through doing. Observing stroke survivors in everyday situations provides professionals a concreter picture of stroke survivors' self-management and comanagement with their partners than can be obtained from an informal interview. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|