Validation of a French Version of the Quality of Life 'Celiac Disease Questionnaire'
| Autor: | Georgia Malamut, Jacques Pouchot, Emmanuel Ecosse, Christophe Cellier, Joël Coste, Carole Despujol |
|---|---|
| Přispěvatelé: | Service de Médecine Interne [CHU HEGP], Centre de référence des syndromes drépanocytaires majeurs-Hôpital Européen Georges Pompidou [APHP] (HEGP), Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Hôpitaux Universitaires Paris Ouest - Hôpitaux Universitaires Île de France Ouest (HUPO)-Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Hôpitaux Universitaires Paris Ouest - Hôpitaux Universitaires Île de France Ouest (HUPO), Maladies chroniques, santé perçue, et processus d'adaptation (APEMAC), Université Paris Descartes - Paris 5 (UPD5)-Université de Lorraine (UL), Service de gastroenterologie [CHU HEGP], Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Hôpital Européen Georges Pompidou [APHP] (HEGP), Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Hôpitaux Universitaires Paris Ouest - Hôpitaux Universitaires Île de France Ouest (HUPO)-Hôpitaux Universitaires Paris Ouest - Hôpitaux Universitaires Île de France Ouest (HUPO), Assistance publique - Hôpitaux de Paris (AP-HP) (APHP)-Hôpital Européen Georges Pompidou [APHP] (HEGP), Hôpitaux Universitaires Paris Ouest - Hôpitaux Universitaires Île de France Ouest (HUPO)-Assistance publique - Hôpitaux de Paris (AP-HP) (APHP)-Hôpitaux Universitaires Paris Ouest - Hôpitaux Universitaires Île de France Ouest (HUPO)-Centre de référence des syndromes drépanocytaires majeurs, Hôpitaux Universitaires Paris Ouest - Hôpitaux Universitaires Île de France Ouest (HUPO)-Assistance publique - Hôpitaux de Paris (AP-HP) (APHP)-Hôpitaux Universitaires Paris Ouest - Hôpitaux Universitaires Île de France Ouest (HUPO) |
| Jazyk: | angličtina |
| Rok vydání: | 2014 |
| Předmět: |
Male
Psychometrics Epidemiology Intraclass correlation lcsh:Medicine Global Health 0302 clinical medicine Quality of life Surveys and Questionnaires Medicine and Health Sciences Medicine Clinical Epidemiology Public and Occupational Health 030212 general & internal medicine lcsh:Science Language Aged 80 and over Multidisciplinary Middle Aged 3. Good health [STAT]Statistics [stat] Convergent validity Research Design Anxiety Female 030211 gastroenterology & hepatology France medicine.symptom Research Article Adult medicine.medical_specialty Adolescent Clinical Research Design Immunology Gastroenterology and Hepatology Research and Analysis Methods Autoimmune Diseases Young Adult 03 medical and health sciences Cronbach's alpha Humans Psychiatry Aged Health Care Policy Survey Research Rasch model business.industry lcsh:R Biology and Life Sciences Reproducibility of Results [SDV.MHEP.HEG]Life Sciences [q-bio]/Human health and pathology/Hépatology and Gastroenterology Health Care Clinical trial Celiac Disease Quality of Life Physical therapy Clinical Immunology lcsh:Q [SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie business |
| Zdroj: | PLoS ONE PLoS ONE, Public Library of Science, 2014, 9 (5), pp.e96346. ⟨10.1371/journal.pone.0096346⟩ PLoS ONE, Vol 9, Iss 5, p e96346 (2014) |
| ISSN: | 1932-6203 |
| DOI: | 10.1371/journal.pone.0096346⟩ |
| Popis: | International audience; Background and Objective: Celiac disease (CD) is a common chronic autoimmune disorder. Both the manifestations of the disease and the burden of the compulsory life-long gluten-free diet (GFD) have been shown to be associated with impairment of health-related quality of life. The objectives of this study were to provide a cross-cultural adaptation of the specific quality of life “Celiac Disease Questionnaire” (CDQ) and to analyze its psychometric properties.Materials and Methods: A cross-cultural French adaptation of the CDQ (F-CDQ) was obtained according to the revised international guidelines. The questionnaire was administered at baseline to 211 patients with biopsy proven CD followed-up in a single tertiary referral centre. The questionnaire was also administered after 7 days and 6 months. Reliability (intraclass correlation coefficients (ICC), Cronbach's alpha and Bland and Altman graphical analysis), validity (factorial structure and Rasch analysis, convergent validity), and responsiveness (effect size) of the F-CDQ were studied.Results: The reliability of the F-CDQ was excellent with ICC and Cronbach's alpha coefficients being between 0.79 and 0.94 for the four subscales and the total score. The factorial structure and the Rasch analysis showed that the four dimensions of the original instrument were retained. Correlations with external measures (a generic measure of quality of life, an anxiety and depression instrument, a self-assessed disease severity, and clinical manifestations) were all in the expected direction confirming the validity of the instrument. Responsiveness was studied and effect sizes ≥0.20 were demonstrated for most of the subscales for patients who reported improvement or deterioration after 6 months.Conclusion: The F-CDQ retains the psychometric properties of the original instrument and should be useful in cross-national surveys and to assess outcome in clinical trials involving patients with CD. |
| Databáze: | OpenAIRE |
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