Assessing health-related quality of life in patients with heart failure: a systematic, standardized comparison of available measures

Autor: Gemma Vilagut, Jordi Alonso, Luis Rajmil, Jose M Valderas, Dennis A. Revicki, Francis Guillemin, Michael Herdman, Montse Ferrer, Aida Ribera, Olatz Garin
Přispěvatelé: CIBER de Epidemiología y Salud Pública (CIBERESP), IMIM-Hospital del Mar, Generalitat de Catalunya, Universitat Pompeu Fabra [Barcelona], Insight Consulting & Research, Universitat Autònoma de Barcelona [Barcelona] (UAB), Vall d'Hebron University Hospital [Barcelona], Agència d’Informació Avaluació i Qualitat en Salut (AIAQS ), Division Public Health and Primary Health Care [Oxford], University of Oxford [Oxford], Centre d'Epidémiologie Clinique (CIC-EC), Centre Hospitalier Régional Universitaire de Nancy (CHRU Nancy)-Institut National de la Santé et de la Recherche Médicale (INSERM), Maladies chroniques, santé perçue, et processus d'adaptation (APEMAC), Université Paris Descartes - Paris 5 (UPD5)-Université de Lorraine (UL), United BioSource Corporation, Universitat Pompeu Fabra [Barcelona] (UPF), Universitat Autònoma de Barcelona (UAB), Centre d'investigation clinique - Epidémiologie clinique [Nancy] (CIC-EC), Centre d'investigation clinique [Nancy] (CIC), Centre Hospitalier Régional Universitaire de Nancy (CHRU Nancy)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Lorraine (UL)-Centre Hospitalier Régional Universitaire de Nancy (CHRU Nancy)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Lorraine (UL)
Rok vydání: 2013
Předmět:
medicine.medical_specialty
MEDLINE
Severity of Illness Index
Quality of life
Sickness Impact Profile
Surveys and Questionnaires
MESH: Severity of Illness Index
Severity of illness
Humans
Medicine
Health profile
In patient
MESH: Surveys and Questionnaires
Heart Failure
Health related quality of life
MESH: Humans
business.industry
MESH: Chronic Disease
Reproducibility of Results
MESH: Quality of Life
Health Status Disparities
Reference Standards
medicine.disease
humanities
3. Good health
MESH: Health Status Disparities
MESH: Reproducibility of Results
MESH: Sickness Impact Profile
Heart failure
Chronic Disease
MESH: Heart Failure
Quality of Life
Physical therapy
MESH: Reference Standards
[SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie
Metric (unit)
Cardiology and Cardiovascular Medicine
business
Zdroj: Heart Failure Reviews
Heart Failure Reviews, Springer Verlag, 2014, 19 (3), pp.359-367. ⟨10.1007/s10741-013-9394-7⟩
ISSN: 1573-7322
1382-4147
DOI: 10.1007/s10741-013-9394-7
Popis: To systematically evaluate available health-related quality of life (HRQL) instruments for use in patients with heart failure (HF). Seven HF-specific HRQL questionnaires and associated studies of their metric properties were identified by systematic review: the Chronic Heart Failure Assessment Tool, the Cardiac Health Profile congestive heart failure, the Chronic Heart Failure Questionnaire (CHFQ), the Kansas City Cardiomyopathy Questionnaire (KCCQ), the Left Ventricular Disease Questionnaire (LVDQ), the Minnesota Living with Heart Failure Questionnaire (MLHFQ), and the Quality of Life in Severe Heart Failure Questionnaire. Each instrument was assessed by four experts using a standardized tool for evaluating patient-reported outcomes (EMPRO; scores from 0 to 100). Four questionnaires were given adequate scores (median >50) for the attribute "conceptual model." The LVDQ had the highest rated median for "reliability" (72.8). The CHFQ, the KCCQ, and the MLHFQ all got reasonable scores for "validity" (from 54.4 to 76.4). The reviewers rated the KCCQ the highest in terms of "sensitivity to change" (median 94.4). Only the CHFQ (50.0) and the KCCQ (72.2) received adequate scores for the "interpretability" attribute. The most highly rated instruments based on the overall EMPRO score were the KCCQ (64.4) and the MLHFQ (60.7), followed by the CHFQ (59.2). Based on the first systematic and reliable expert-based evaluation of available HF-specific HRQL questionnaires, the evidence seems to support the choice of the KCCQ, the MLHFQ, and the CHFQ over the others, which require further research on metric properties. © 2013 Springer Science+Business Media New York.
Databáze: OpenAIRE
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