The nutritional management of people living with amyotrophic lateral sclerosis: A national survey of dietitians
| Autor: | Alexander J McGeachan, Sean White, Christopher J McDermott, Vanessa Halliday, Isobel Anne Williams, Mike Bradburn, Paul Norman, Elizabeth Coates, Nicolò Zarotti, David White, Daniel Beever, Gemma Hackney, Theocharis Stavroulakis |
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| Rok vydání: | 2021 |
| Předmět: |
0301 basic medicine
medicine.medical_specialty Medicine (miscellaneous) Nutritional Status 030209 endocrinology & metabolism Energy requirement 03 medical and health sciences 0302 clinical medicine Weight loss Weight maintenance medicine Humans Resting energy expenditure Nutritionists Amyotrophic lateral sclerosis 030109 nutrition & dietetics Nutrition and Dietetics business.industry Amyotrophic Lateral Sclerosis Malnutrition medicine.disease Nutrition Assessment Family medicine medicine.symptom business Motor neurone disease Body mass index |
| Zdroj: | Journal of human nutrition and dietetics : the official journal of the British Dietetic AssociationREFERENCES. 34(6) |
| ISSN: | 1365-277X |
| Popis: | Background People living with amyotrophic lateral sclerosis (ALS) face many challenges with respect to taking adequate nutrition. Growing evidence links weight loss with negative prognostic outcomes. We aimed to explore the practice of dietitians in the UK with regard to the nutritional management of ALS. Methods A national online survey was disseminated via professional groups, social media and newsletters to UK healthcare professionals between September and November 2018. The survey examined the nutritional management of ALS. Dietitian responses are reported in the present study. Results In total, 130 dietitians responded to the survey. Two-thirds reported that ALS comprised less than 20% of their total patient caseload. Forty-two percent reported that nutritional screening took place in their organisation. One-half of dietitians reported that patients were referred for dietetic assessment at 'about the right time', although 44% reported referrals were made too late. The majority (83%) of dietitians used resting energy expenditure predictive equations not validated in ALS. When setting weight goals, dietitians reported most frequently recommending weight maintenance if the patient's body mass index was 18.5-25 kg m-2 (72%), 25-30 kg m-2 (98%), and > 30 kg m-2 (79%). In addition, 43% reported that people with ALS were not weighed sufficiently frequently. Conclusions Although the importance of early nutritional assessment is recognised, the timeliness of dietetic input and on-going monitoring of nutritional status in ALS care might not currently be ideal. Dietitians report using energy requirement predictive equations and setting weight goals that may not promote positive outcomes. Further research is required to understand the optimal nutritional management of ALS. |
| Databáze: | OpenAIRE |
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