The Need for Patient-centered Education Among Patients Newly Diagnosed With a Pituitary Tumor
| Autor: | Mindy E. Flanagan, Rachel Gruber, Thomas F. Imperiale, Dana Erickson, Tayler Gowan, Ann Cottingham, Diane Donegan |
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| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
medicine.medical_specialty
patient satisfaction diagnosis Endocrinology Diabetes and Metabolism 030209 endocrinology & metabolism patient education 03 medical and health sciences 0302 clinical medicine Patient satisfaction pituitary tumors Intervention (counseling) Patient experience medicine business.industry Pituitary tumors medicine.disease anxiety Distress 030220 oncology & carcinogenesis Family medicine Anxiety Brief Reports medicine.symptom business AcademicSubjects/MED00250 Qualitative research Patient education |
| Zdroj: | Journal of the Endocrine Society |
| ISSN: | 2472-1972 |
| Popis: | Objectives Brain tumors, including pituitary adenomas (PA), cause anxiety and distress, with a high unmet need for information correlating with increased anxiety. Condition-specific education may alleviate anxiety. We explored patients’ experience around the diagnosis of a PA and piloted a patient education intervention to address peridiagnostic anxiety in adults diagnosed with PA. Methods Anxiety, patient satisfaction, patient knowledge, and need for information were measured prior to, immediately after, and 1 month following the appointment in this multimethods study. A phone interview to explore patient diagnostic and intervention experiences was analyzed using qualitative methods. Results A total of 17 patients participated in the study; 15 completed the interview. The baseline need for information was high. Disease-specific anxiety decreased, and patient knowledge and satisfaction increased significantly after the initial visit. Interview analysis identified 3 main themes: (1) the importance of communication; (2) the need for information; and (3) the impact of the diagnosis on patient experience. Conclusions For patients with newly diagnosed PA, the diagnostic experience was associated with high levels of anxiety. Patients expressed a need for information. Information delivery reduced anxiety and had a positive impact on patient satisfaction. Practice Implications The study findings suggest a need for a streamlined diagnostic process with readily accessible information. |
| Databáze: | OpenAIRE |
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