Working with the Hmong Population in a Genetics Setting: Genetic Counselor Perspectives
Autor: | Catherine A. Reiser, Elizabeth M. Petty, Jennifer Rietzler, Aime Agather |
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Rok vydání: | 2017 |
Předmět: |
Male
0301 basic medicine Genetic counseling education Population Language barrier Genetic Counseling 030105 genetics & heredity computer.software_genre 03 medical and health sciences 0302 clinical medicine Asian People Humans Medicine Genetics (clinical) Medical education education.field_of_study business.industry Communication Barriers Professional-Patient Relations Translating United States Hmong Language Counselors Telephone interview 030220 oncology & carcinogenesis Limited English proficiency Female business computer Cultural competence Interpreter Clinical psychology |
Zdroj: | Journal of Genetic Counseling. 26:1388-1400 |
ISSN: | 1573-3599 1059-7700 |
DOI: | 10.1007/s10897-017-0117-4 |
Popis: | The Hmong language lacks words for many familiar Western medical genetic concepts which may impact genetic counseling sessions with individuals of Hmong ancestry who have limited English proficiency. To study this interaction, a qualitative, semi-structured interview was designed to address genetic counselors' experiences of genetic counseling sessions working with individuals with Hmong ancestry. Genetic counselors in the three states with the largest population of Hmong individuals (California, Minnesota and Wisconsin) were invited via email to participate in a telephone interview. Eleven counselors' interviews were transcribed and analyzed for emergent themes. Each of the counselors had served Hmong patients in a variety of clinics and possessed counseling experience ranging from approximately one to greater than 20 years. Interviews highlighted strengths and challenges in genetic counseling sessions with Hmong patients with limited English proficiency in each of five categories: 1) relevant training during graduate school, 2) session preparation, 3) content of the counseling session, 4) perception of Hmong culture, and 5) reflections on working with Hmong interpreters. Cultural awareness and education in training programs were highlighted by all genetic counselors as valued components to patient care. All interviewees had worked with professional Hmong medical interpreters, but had different expectations for the interpreter with whom they worked. To help improve genetic services for Hmong individuals in the United States, we offer suggestions to improve some of the challenges mentioned, and recommend further studies to investigate the genetic counselor and interpreter relationship. |
Databáze: | OpenAIRE |
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