Digital Mega-Studies as a New Research Paradigm: Governing the Health Research of the Future
| Autor: | Melissa Wake, Jessica Bell, Megan Prictor, Lynda O'Brien, Lauren Davenport |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
Knowledge management
Social Psychology Process (engineering) business.industry Communication Corporate governance media_common.quotation_subject Australia Mega Trust Education Multidisciplinary approach Political science Key (cryptography) Humans business Medical ethics Research data Diversity (politics) media_common |
| Zdroj: | Journal of empirical research on human research ethics : JERHRE. 16(4) |
| ISSN: | 1556-2654 |
| Popis: | ‘Digital Mega-Studies’ are entirely or extensively digitised, longitudinal, population-scale initiatives, collecting, storing, and making available individual-level research data of different types and from multiple sources, shaped by technological developments and unforeseeable risks over time. The Australian ‘Gen V’ project exemplifies this new research paradigm. In 2019, we undertook a multidisciplinary, multi-stakeholder process to map Digital Mega-Studies’ key characteristics, legal and governance challenges and likely solutions. We conducted large and small group processes within a one-day symposium and directed online synthesis and group prioritisation over subsequent weeks. We present our methods (including elicitation, affinity mapping and prioritisation processes) and findings, proposing six priority governance principles across three areas—data, participation, trust—to support future high-quality, large-scale digital research in health. |
| Databáze: | OpenAIRE |
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