The RaDiCEA Project: cost of illness (COI) analysis applied to Cryopyrin Associated Periodic Syndromes (CAPS)
| Autor: | Silvia Federici, Valentina Lorenzoni, Pierre Quartier, F. Pierotti, L Trieste, P Duong Ngoc, Giuseppe Turchetti, A Martini, L Accame, Marco Gattorno, N Cabrera Rojas, O Della Casa Alberighi |
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| Rok vydání: | 2015 |
| Předmět: |
medicine.medical_specialty
Pediatrics business.industry fungi Alternative medicine Cryopyrin-associated periodic syndrome Disease Disability pension medicine.disease Rheumatology Poster Presentation Pediatrics Perinatology and Child Health medicine Cost of illness Immunology and Allergy Pediatrics Perinatology and Child Health Autoinflammatory disease Intensive care medicine business |
| Zdroj: | Europe PubMed Central Pediatric Rheumatology Online Journal |
| ISSN: | 1546-0096 |
| Popis: | When a disease affects only a few individuals in each country (ultra-orphan disease), it can be very hard to establish the costs of illness (COI) and the cost-effectiveness (CE) of treatments (ultra-orphan drugs). Conventional methods for COI and CE of drugs for common conditions do not apply, and additional factors need to be considered. As expensive medications (biologicals) show promising results, it becomes crucial to have detailed information on as many patients as possible. |
| Databáze: | OpenAIRE |
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