What is important for people with nontuberculous mycobacterial disease? An EMBARC-ELF patient survey
| Autor: | Josje Altenburg, Tove Berg, Ernie Lloyd, Barbara Crossley, Eva Polverino, Pieter Goeminne, Annette Posthumus, Francesco Blasi, Thomas Ruddy, Stefano Aliberti, Jeanette Boyd, Timothy Alan, Bridget Harris, Michal Shteinberg, James D. Chalmers |
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| Přispěvatelé: | Pulmonary medicine, Institut Català de la Salut, [Shteinberg M] Pulmonology Institute and CF Center, Carmel Medical Center and the Technion, Israel Institute of Technology, Haifa, Israel. [Boyd J] European Lung Foundation, Sheffield, UK. [Aliberti S] Dept of Pathophysiology and Transplantation, University of Milan, and Internal Medicine Dept, Respiratory Unit and Cystic Fibrosis Adult Center, Milan, Italy. [Polverino E] Servei de Pneumologia, Vall d’Hebron Hospital Universitari, Barcelona, Spain. Thorax Institute, Institute of Biomedical Research August Pi i Sunyer, University of Barcelona, Barcelona, Spain. [Harris B, Berg T] European Lung Foundation Bronchiectasis Patient Advisory Group, Edinburgh, UK, Vall d'Hebron Barcelona Hospital Campus, Pulmonology, AII - Infectious diseases |
| Rok vydání: | 2020 |
| Předmět: |
Investigative Techniques::Epidemiologic Methods::Data Collection::Surveys and Questionnaires [ANALYTICAL
DIAGNOSTIC AND THERAPEUTIC TECHNIQUES AND EQUIPMENT] Pulmonary and Respiratory Medicine medicine.medical_specialty infecciones bacterianas y micosis::infecciones bacterianas::infecciones por bacterias grampositivas::infecciones por Actinomycetales::micobacteriosis::infecciones por micobacterias no tuberculosas [ENFERMEDADES] Medical staff Pacients - Satisfacció MEDLINE lcsh:Medicine Pulmonary disease Enquestes Pharmacological treatment Unmet needs 03 medical and health sciences 0302 clinical medicine Medicine Micobacteriosis - Tractament 030212 general & internal medicine Intensive care medicine Otros calificadores::/terapia [Otros calificadores] business.industry Bacterial Infections and Mycoses::Bacterial Infections::Gram-Positive Bacterial Infections::Actinomycetales Infections::Mycobacterium Infections::Mycobacterium Infections Nontuberculous [DISEASES] Original Research Letters lcsh:R técnicas de investigación::métodos epidemiológicos::recopilación de datos::encuestas y cuestionarios [TÉCNICAS Y EQUIPOS ANALÍTICOS DIAGNÓSTICOS Y TERAPÉUTICOS] Other subheadings::/therapy [Other subheadings] Mycobacterial disease bacterial infections and mycoses 030228 respiratory system Patient survey business |
| Zdroj: | ERJ Open Research, 7(1). BMJ Publishing Group Scientia ERJ Open Research, Vol 7, Iss 1 (2021) ERJ Open Research article-version (VoR) Version of Record ERJ open research, 7(1):00807-2020. European Respiratory Society Shteinberg, M, Boyd, J, Aliberti, S, Polverino, E, Harris, B, Berg, T, Posthumus, A, Ruddy, T, Goeminne, P, Lloyd, E, Alan, T, Altenburg, J, Crossley, B, Blasi, F & Chalmers, J 2021, ' What is important for people with nontuberculous mycobacterial disease? An EMBARC-ELF patient survey ', ERJ Open Research, vol. 7, no. 1 . https://doi.org/10.1183/23120541.00807-2020 |
| ISSN: | 2312-0541 |
| DOI: | 10.1183/23120541.00807-2020 |
| Popis: | The prevalence of nontuberculous mycobacteria (NTM) pulmonary disease (NTM-PD) is rising worldwide, creating a significant health issue and an unmet need. The diagnosis and decision to treat NTM-PD are often a challenge, with complex criteria for diagnosis and multiple factors weighing in the decision to treat [1]. The treatment is lengthy and the drugs used often associated with adverse effects. Adherence to NTM-PD management guidelines were found to be suboptimal, impacting treatment success [2], with substantial differences in physicians’ decision to treat and in their adherence to treatment guidelines [2–4]. Patients’ experiences of NTM pulmonary disease highlight important and unmet needs for better pharmacological treatment and education of medical staff https://bit.ly/3mjrlwh |
| Databáze: | OpenAIRE |
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