Primary caregivers’ experience with the informed consent process in the paediatric emergency department: An interview-based qualitative study
| Autor: | Ibrahim Sandokji, Adonis Wazir, Rasha D. Sawaya, Morten Greaves |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
medicine.medical_specialty
fungi Exploratory research Original Articles 06 humanities and the arts 0603 philosophy ethics and religion Tertiary care law.invention 03 medical and health sciences 0302 clinical medicine law Informed consent Family medicine Pediatrics Perinatology and Child Health medicine CLARITY Knowledge transmission 060301 applied ethics 030212 general & internal medicine Psychology Paediatric emergency Qualitative research Paediatric patients |
| Zdroj: | Paediatr Child Health |
| ISSN: | 1918-1485 1205-7088 |
| DOI: | 10.1093/pch/pxab007 |
| Popis: | Objective This study aims to understand primary caregivers’ (PCG) experience with the informed consent (IC) process. Methods We conducted in-depth interviews with PCGs of paediatric patients who underwent a procedure requiring IC in the paediatric emergency department (PED) of a tertiary care paediatric centre in the USA, between January and March 2013 and between September 2013 and January 2014. We triangulated the qualitative findings from the PCG interviews with Likert-scale responses from the PCGs and with results from surveyed physicians. Results We included 14 PCG–physician dyads. Our results show that PCGs understand the importance of the IC process. They appreciated the calm demeanor of providers, and the clarity of their wording. PCGs felt that IC can add to the stress, and that it could be made simpler and timelier. PCGs also had varying extents of retention of the information provided. Conclusion This exploratory study suggests an overall positive IC experience of the PCGs while highlighting areas for improvement including a more thorough discussion of alternatives, a better assessment of knowledge transmission and retention by the PCG, and recognition of the PCG’s discomfort during decision making in a stressful environment. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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