Implementation and evaluation of a therapeutic patient education programme during a clinical trial in Yaoundé, Cameroon – Trial ANRS-12286/MOBIDIP

Autor: Frida Essomba, Geraldine Manirakiza Mberyo, Geneviève Lamarre, Sinata Koulla-Shiro, Hermine Abessolo, Olga Bell, Eric Delaporte, Roselyne Toby, Pretty Mbouyap, Angeline Bikié, Adrien Galy, Laura Ciaffi
Přispěvatelé: Recherches Translationnelles sur le VIH et les maladies infectieuses endémiques er émergentes (TransVIHMI), Université Cheikh Anta Diop [Dakar, Sénégal] (UCAD)-Institut de Recherche pour le Développement (IRD)-Université de Yaoundé I-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Montpellier (UM)-Université Montpellier 1 (UM1), Institut de formation et de recherche démographiques (IFORD), Division of Health Operations Research, Ministry of Public Health
Rok vydání: 2018
Předmět:
Zdroj: Patient Education and Counseling
Patient Education and Counseling, Elsevier, 2018, 101 (7), pp.1262--1269. ⟨10.1016/j.pec.2018.01.021⟩
ISSN: 0738-3991
DOI: 10.1016/j.pec.2018.01.021
Popis: International audience; OBJECTIVES: High adherence is needed to maintain antiretroviral therapy efficacy. Few attempts at therapeutic patient education (TPE) have been made in sub-Saharan Africa. We describe patients' achievements before intervention and identified needs, TPE programme implementation and evaluation, and patients' satisfaction. METHODS: The TPE programme was proposed to patients in the ANRS-12286/MOBIDIP trial. Beforehand, a directory of competences to manage HIV infection was designed. Patients' HIV-related knowledge and skills assessment was realised, leading to an educational contract. Evaluation was performed using a standardised collection form and a satisfaction survey. RESULTS: Of 154 patients, 146 underwent TPE. During a median of 1.8 years, 47% of patients had >=3 consultations. Educational assessment revealed limited knowledge about HIV disease. Conversely, patients had frequently managed issues of adherence or disclosure. A median of 12 objectives were considered per patient, and 75% were attained. Objectives from the cognitive domain were less frequently attained. Patients appeared satisfied with the intervention: more emphasis was placed on psycho-affective aspects or experience-sharing than on the acquisition of knowledge. CONCLUSION: Active listening, know-how and a space for discussion appear more important for patients than knowledge on disease or treatments. PRACTICE IMPLICATIONS: In HIV care, the directory of learning objectives should be revised to include more objectives concerning practical skills for disease management.
Databáze: OpenAIRE