Experiences with the survivorship care plan in primary care providers of childhood cancer survivors: a mixed methods approach
| Autor: | Daniel J. Zheng, Nina S. Kadan-Lottick, Neel S. Iyer, Wilhelmenia L. Ross, Hannah-Rose Mitchell |
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| Rok vydání: | 2017 |
| Předmět: |
Adult
Male medicine.medical_specialty education Childhood cancer Qualitative property Primary care Physicians Primary Care Grounded theory 03 medical and health sciences 0302 clinical medicine Nursing Neoplasms health services administration Survivorship curve Care plan Humans Medicine Survivors 030212 general & internal medicine Aged business.industry Nursing research Qualitative interviews Middle Aged humanities Oncology 030220 oncology & carcinogenesis Family medicine Female business |
| Zdroj: | Supportive Care in Cancer. 25:1547-1555 |
| ISSN: | 1433-7339 0941-4355 |
| DOI: | 10.1007/s00520-016-3544-0 |
| Popis: | Focusing on primary care providers (PCPs) of known childhood cancer survivors, we used a mixed methods approach to understand providers’ experiences with the survivorship care plan (SCP), as well as preferences and barriers regarding survivorship care. The SCP was sent to 202 eligible PCPs of patients attending a regional survivorship clinic. The PCPs then completed quantitative postal surveys. Sixteen PCPs underwent an additional qualitative interview. Provider characteristics were examined as potential predictors of experiences, preferences, and barriers regarding survivorship care. Grounded theory was utilized to analyze the qualitative data. Respondents (n=134) included 55% pediatricians, 23% internists, 20% family practitioners, and 2% obstetricians/gynecologists. Only 8% of PCPs preferred to have primary responsibility for survivorship care; 46% favored a specialized clinic. A minority of PCPs reported that they felt “very comfortable” using the SCP to guide surveillance (31%) or deliver all survivorship care (3%). Endorsed barriers included lack of knowledge/training (74%), not recalling or understanding the contents of the SCP (69%), and uncertainty about who is responsible for providing care (58%). Two distinct themes emerged from the qualitative interviews: a preference not to be responsible for survivorship care, and uncertain utility of the SCP. Our study suggests that PCPs of childhood cancer survivors generally felt uncomfortable using the SCP and providing survivorship care. Even with the availability of the SCP, the biggest barrier was lack of knowledge. Our data suggests that including PCPs in survivorship care will require additional educational opportunities and evaluation of more collaborative models of care delivery. |
| Databáze: | OpenAIRE |
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