Racial differences in symptom management experiences during breast cancer treatment
Autor: | Crystal Dixon, Amanda Kotey, Vickie Whitt, Samuel Cykert, Fatima Guerrab, Cleo A. Samuel, Stephanie Baker, Nora Jones, Eugenia Eng, Jemeia Kollie, Olive Mbah, Jessica Taylor, Claire Morse, Jennifer Schaal, Linda Robertson, Kristin Z. Black, Katrina R. Ellis |
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Rok vydání: | 2017 |
Předmět: |
medicine.medical_specialty
Pain medicine Participatory action research Breast Neoplasms Article 03 medical and health sciences 0302 clinical medicine Breast cancer medicine Humans 030212 general & internal medicine Aged Symptom management business.industry Nursing research Cancer Focus Groups medicine.disease Focus group Race Factors Treatment Outcome Oncology 030220 oncology & carcinogenesis Family medicine Physical therapy Female Racial differences business |
Zdroj: | Supportive Care in Cancer. 26:1425-1435 |
ISSN: | 1433-7339 0941-4355 |
Popis: | PURPOSE: Racial disparities in cancer treatment-related symptom burden are well-documented and linked to worse treatment outcomes. Yet, little is known about racial differences in patients’ treatment-related symptom management experiences. Such understanding can help identify modifiable drivers of symptom burden inequities. As part of the Cancer Health Accountability for Managing Pain and Symptoms (CHAMPS) study, we examined racial differences in symptom management experiences among Black and White breast cancer survivors (BCS). METHODS: We conducted six focus groups (n=3 Black BCS groups; n=3 White BCS groups) with 22 stage I-IV BCS at two cancer centers. Focus groups were audio-recorded and transcribed verbatim. Based on key community-based participatory research principles, our community/academic/medical partner team facilitated focus groups and conducted qualitative analyses. RESULTS: All BCS described positive symptom management experiences, including clinician attentiveness to symptom concerns and clinician recommendations for pre-emptively managing symptoms. Black BCS commonly reported having to advocate for themselves to get information about treatment-related symptoms, and indicated dissatisfaction regarding clinicians’ failure to disclose potential treatment-related symptoms or provide medications to address symptoms. White BCS often described dissatisfaction regarding inadequate information on symptom origins and clinicians' failure to offer reassurance. CONCLUSIONS: This study elucidates opportunities for future research aimed at improving equity for cancer treatment-related symptom management. For Black women, warnings about anticipated symptoms and treatment for ongoing symptoms were particular areas of concern. Routine symptom assessment for all women, as well as clinicians’ management of symptoms for racially-diverse cancer patients, need to be more thoroughly studied and addressed. |
Databáze: | OpenAIRE |
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