Engaging the Deaf American Sign Language Community: Lessons From a Community-Based Participatory Research Center
| Autor: | Michael McKee, Julia Velasquez, Patrick Graybill, Matthew R. Starr, John T. Reid, Poorna Kushalnagar, Thomas A. Pearson, Denise Thew |
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| Rok vydání: | 2012 |
| Předmět: |
Community-Based Participatory Research
Health (social science) Sociology and Political Science American Sign Language education Population Participatory action research Community-based participatory research Sign language Trust Peer Group Article Education Sign Language Nursing otorhinolaryngologic diseases Humans Sociology Cooperative Behavior Medical education education.field_of_study Communication ComputingMilieux_PERSONALCOMPUTING Health services research Health Status Disparities General Medicine United States humanities Health equity language.human_language Persons With Hearing Impairments Socioeconomic Factors Community health language ComputingMilieux_COMPUTERSANDSOCIETY Health Services Research |
| Zdroj: | Progress in Community Health Partnerships: Research, Education, and Action. 6:321-329 |
| ISSN: | 1557-055X |
| DOI: | 10.1353/cpr.2012.0037 |
| Popis: | Background: Numerous publications demonstrate the importance of community-based participatory research (CBPR) in community health research, but few target the Deaf community. The Deaf community is understudied and underrepresented in health research despite suspected health disparities and communication barriers. Objectives: The goal of this paper is to share the lessons learned from the implementation of CBPR in an understudied community of Deaf American Sign Language (ASL) users in the greater Rochester, New York, area. Methods: We review the process of CBPR in a Deaf ASL community and identify the lessons learned. Results: Key CBPR lessons include the importance of engaging and educating the community about research, ensuring that research benefits the community, using peer-based recruitment strategies, and sustaining community partnerships. These lessons informed subsequent research activities. Conclusions: This report focuses on the use of CBPR principles in a Deaf ASL population; lessons learned can be applied to research with other challenging-to-reach populations. |
| Databáze: | OpenAIRE |
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