Does talking about end of life with adults with intellectual disability cause emotional discomfort or psychological harm?
| Autor: | Roger J. Stancliffe, Josephine M. Clayton, Michele Wiese, Rebecca Barton, Gail Jeltes, Sue Read |
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| Rok vydání: | 2020 |
| Předmět: |
Adult
030506 rehabilitation Longitudinal study Anxiety Education 03 medical and health sciences 0302 clinical medicine Intellectual Disability Intervention (counseling) Intellectual disability Developmental and Educational Psychology medicine Humans Longitudinal Studies 030212 general & internal medicine Pre and post Depression (differential diagnoses) Depression medicine.disease Death Harm medicine.symptom 0305 other medical science Psychology Fear of death Clinical psychology |
| Zdroj: | Journal of Applied Research in Intellectual Disabilities. 34:659-669 |
| ISSN: | 1468-3148 1360-2322 |
| Popis: | Background Caregivers often avoid involving people with intellectual disability in end-of-life discussions and activities. One reason is fear that the person may become upset or psychologically harmed. Methods Pre and post a 6-month intervention about end of life, we assessed depression, anxiety, and fear of death among intervention (n = 24) and comparison (n = 20) participants with intellectual disability. End-of-life 'encounters' (conversations/activities about end of life) were monitored, including comfort ratings. Results Overall, 79% of encounters were rated very comfortable/somewhat comfortable. Participants initiated 69% of encounters. There was no significant pre-post change in depression or fear of death. Anxiety improved significantly. Conclusions This is the first controlled, longitudinal study providing robust evidence about whether discussing end of life leads to emotional discomfort or psychological harm. Data showed adults with intellectual disability can safely engage in conversations/activities about end of life. The high percentage of participant-initiated encounters showed participants wanted to talk about end of life. |
| Databáze: | OpenAIRE |
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