Developing a Web Platform to Optimize the Self-Management of People Living with a Chronic Respiratory Disease
| Autor: | Pascale St-Jean, Pamela Tanguay, Isabelle Gervais, Simon Décary, Nicole Marquis, Justine Martineau-Roy, Michel Tousignant, Emilie-Maude Gravel |
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| Rok vydání: | 2021 |
| Předmět: |
medicine.medical_specialty
business.industry medicine.medical_treatment Respiratory disease Pulmonary disease Physical Therapy Sports Therapy and Rehabilitation Usability Articles Health outcomes medicine.disease 03 medical and health sciences 0302 clinical medicine 030228 respiratory system Quality of life Breathing exercises medicine Physical therapy Pulmonary rehabilitation 030212 general & internal medicine business Logbook |
| Zdroj: | Physiother Can |
| ISSN: | 0300-0508 |
| Popis: | Purpose: The purpose of this article is to describe the development of a new Web platform to optimize self-management after pulmonary rehabilitation (PR) for persons living with a chronic respiratory disease (CRD) and to present data on its usability. Method: The Web platform is informed by a theoretical framework of behaviour changes and concepts of self-management and self-efficacy. It uses breathing exercises and a logbook and is meant to be a self-management tool. Usability was tested for 8 months after PR with a group consisting of five patients with chronic obstructive pulmonary disease and one with pulmonary fibrosis. We evaluated adherence (e.g., number of exercise/weeks), quality of life, dyspnoea, and functional capacity. We measured frequency count for adherence and pre–post differences per patient for clinical outcomes. Results: Four participants’ adherence was higher than 50% of completed exercises (72 exercise/weeks). Five of six participants showed maintenance of functional capacity (6-minute walk test) 8 months after PR. Four participants showed maintenance of their quality of life. Four participants showed a deterioration in dyspnoea on the Borg Scale of Perceived Exertion. Conclusions: We developed a new theory-informed Web platform to optimize self-management after PR for persons living with a CRD. The pilot Web platform appears to optimize adherence to self-management techniques and possibly stabilize people’s health outcomes. |
| Databáze: | OpenAIRE |
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