Hirschsprung's disease: healthcare meets the needs
| Autor: | Gerard C. Madern, Mirjam A. G. Sprangers, Paul N.M.A. Rieu, Mechteld R. M. Visser, Daniel C. Aronson, Zacharias J. de Langen, Marianne J. G. Hanneman, Esther Hartman, David C. van der Zee, Marina van Silfhout-Bezemer, L. W. Ernest van Heurn, Frans J. Oort |
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| Přispěvatelé: | Pediatric Surgery, Cancer Center Amsterdam, Amsterdam Public Health, Medical Psychology, General practice, Paediatric Surgery, Other Research, Algemene Heelkunde, RS: NUTRIM School of Nutrition and Translational Research in Metabolism, Faculteit Medische Wetenschappen/UMCG, SMART Movements (SMART) |
| Rok vydání: | 2006 |
| Předmět: |
Adult
Pediatrics medicine.medical_specialty Adolescent MEDLINE CHILDREN Disease Health Services Accessibility Patient satisfaction Quality of life (healthcare) Patient Education as Topic QUALITY-OF-LIFE ADOLESCENTS Health care Medicine Humans healthcare needs Mild form Hirschsprung Disease Child Hirschsprung's disease Netherlands Quality of Health Care Health Services Needs and Demand Cardiovascular diseases [NCEBP 14] business.industry healthcare use General Medicine Continuity of Patient Care Middle Aged medicine.disease Mental health pediatric care quality of life Genetic defects of metabolism [UMCN 5.1] INCONTINENCE Patient Satisfaction Pediatrics Perinatology and Child Health Surgery business MENTAL-HEALTH |
| Zdroj: | Journal of Pediatric Surgery, 41(8), 1420-1424. W.B. Saunders Journal of Pediatric Surgery, 41, 1420-4 Journal of pediatric surgery, 41(8), 1420-1424. W.B. Saunders Ltd Journal of Pediatric Surgery, 41, 8, pp. 1420-4 Journal of Pediatric Surgery, 41(8), 1420-1424. W B Saunders Co-Elsevier Inc Journal of Pediatric Surgery, 41(8), 1420-1424. W B SAUNDERS CO-ELSEVIER INC |
| ISSN: | 0022-3468 |
| Popis: | Objective: The objective of this study was to examine the types of healthcare services used by children, adolescents, and adults with Hirschsprung Disease (HD) in relation to the severity of the initial defect (mild, severe), whether additional care was needed, the provision of information, transfer to adult care, and satisfaction with the care provided.Methods: Three hundred twenty (71%) HD patients, ages 6 to 54, completed a questionnaire that assessed the use of healthcare set-vices, the need for more healthcare, the provision of information, the transfer to adult care and satisfaction with the provided care.Results: In 6 months, 45% of the children, 14% of the adolescents, and 15% of the adults consulted a medical specialist. Compared with patients with a mild form of HD in the age range of 6 to 16 years, only the more severely afflicted adult patients visited medical professionals more often (10% vs 29%) (P Conclusions: There is good access to medical healthcare services, especially for children. The only lacuna in the healthcare system we revealed was a lack of information, particularly for adult patients. Most parents and patients reported to be very satisfied with the provided care. (c) 2006 Elsevier Inc. All rights reserved. |
| Databáze: | OpenAIRE |
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