Qualitative Data Sharing: Participant Understanding, Motivation, and Consent

Autor: Alicia VandeVusse, Jennifer Mueller, Sebastian Karcher
Rok vydání: 2021
Předmět:
SocArXiv|Social and Behavioral Sciences|Sociology|Methodology
Internet privacy
Qualitative property
privacy
moral perspectives
SocArXiv|Social and Behavioral Sciences|Sociology
Humans
SocArXiv|Social and Behavioral Sciences|Sociology|Medical Sociology
Confidentiality
Research Articles
Qualitative Research
Motivation
Informed Consent
Information Dissemination
business.industry
Public Health
Environmental and Occupational Health
bepress|Social and Behavioral Sciences|Sociology|Medicine and Health
confidentiality
ethics
abortion < reproduction
bepress|Social and Behavioral Sciences|Sociology
Data sharing
bepress|Social and Behavioral Sciences|Sociology|Quantitative
Qualitative
Comparative
and Historical Methodologies
qualitative
bepress|Social and Behavioral Sciences
Female
SocArXiv|Social and Behavioral Sciences
Psychology
business
Qualitative research
Zdroj: Qualitative Health Research
ISSN: 1552-7557
1049-7323
Popis: Expectations to share data underlying studies are increasing, but research on how participants, particularly those in qualitative research, respond to requests for data sharing is limited. We studied research participants’ willingness to, understanding of, and motivations for data sharing. As part of a larger qualitative study on abortion reporting, we conducted interviews with 64 cisgender women in two states in early 2020 and asked for consent to share de-identified data. At the end of interviews, we asked participants to reflect on their motivations for agreeing or declining to share their data. The vast majority of respondents consented to data sharing and reported that helping others was a primary motivation for agreeing to share their data. However, a substantial number of participants showed a limited understanding of the concept of “data sharing.” Additional research is needed on how to improve participants’ understanding of data sharing and thus ensure fully informed consent.
Databáze: OpenAIRE
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