Disease activity and health-care utilization among young adults with childhood-onset lupus transitioning to adult care: data from the Pediatric Lupus Outcomes Study
| Autor: | Aimee O. Hersh, Erica F. Lawson, Sara L Haro |
|---|---|
| Rok vydání: | 2020 |
| Předmět: |
Adult
Male Pediatrics medicine.medical_specialty Transition to Adult Care Adolescent Adult care Severity of Illness Index Disease activity 03 medical and health sciences Young Adult 0302 clinical medicine Rheumatology 030225 pediatrics Health care Outcome Assessment Health Care Medicine Humans Lupus Erythematosus Systemic Longitudinal Studies Prospective Studies Young adult Age of Onset Child 030203 arthritis & rheumatology Systemic lupus erythematosus business.industry Patient Acceptance of Health Care medicine.disease Cross-Sectional Studies Disease Progression Quality of Life Female business |
| Zdroj: | Lupus. 29(10) |
| ISSN: | 1477-0962 |
| Popis: | Background Individuals with childhood-onset systemic lupus erythematosus (cSLE) must transfer from pediatric to adult care. The goal of this study was to examine disease activity and health-care utilization among young adults with cSLE who are undergoing or have recently completed the transfer to adult care. Methods The Pediatric Lupus Outcomes Study (PLOS) is a prospective longitudinal cohort study of young adults aged 18–30 diagnosed with cSLE. We conducted a cross-sectional analysis comparing 47 participants under the care of pediatric rheumatologists to 38 who had completed transfer to adult care. Demographics, disease manifestations, health- care utilization and transition readiness were compared between groups. Results Those in the post-transfer group had significantly lower medication usage and were less likely to have seen a rheumatologist in the past year. Disease manifestations, flare rates, and hospitalizations were similar between groups. Nearly a quarter of patients who had transferred to adult care reported difficulties with the process. Conclusion Post-transfer patients had lower health-care utilization as evidenced by less medication usage and lack of rheumatology follow-up, in spite of the fact that disease activity was similar in both groups. Future studies will assess longitudinal changes in disease activity and damage in this population. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|