Explanatory models and openness about dementia in migrant communities: a qualitative study among female family carers
| Autor: | Anneke Francke, Marco M. Blom, Nies J. van Grondelle, Emine Kayan Acun, Nienke van Wezel, Walter Devillé |
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| Přispěvatelé: | AISSR Other Research (FMG), Global Health, Public and occupational health, APH - Quality of Care, VU University medical center, APH - Aging & Later Life |
| Jazyk: | angličtina |
| Rok vydání: | 2018 |
| Předmět: |
Adult
Male Health Knowledge Attitudes Practice Turkey Sociology and Political Science Turkish media_common.quotation_subject Explanatory model Emigrants and Immigrants Shame Developmental psychology 03 medical and health sciences 0302 clinical medicine mental disorders medicine Humans Dementia Family Women 030212 general & internal medicine Big Five personality traits Qualitative Research Aged Netherlands media_common Suriname 030504 nursing Communication General Social Sciences General Medicine social sciences Middle Aged medicine.disease Focus group language.human_language Morocco Caregivers Feeling language Female 0305 other medical science Psychology Qualitative research |
| Zdroj: | van Wezel, N, Francke, A L, Kayan Acun, E, Devillé, W L JM, van Grondelle, N J & Blom, M M 2018, ' Explanatory models and openness about dementia in migrant communities: A qualitative study among female family carers ', Dementia, vol. 17, no. 7, pp. 840-857 . https://doi.org/10.1177/1471301216655236 Dementia, 17(7), 840-857. SAGE Publications Ltd |
| ISSN: | 1741-2684 1471-3012 |
| DOI: | 10.1177/1471301216655236 |
| Popis: | Background The prevalence of dementia is increasing among people with a Turkish, Moroccan and Surinamese-Creole background. Because informal care is very important in these communities, it is pertinent to see what explanations female family carers have for dementia and whether they can discuss dementia openly within the community and the family. Method Forty-one individual interviews and six focus group interviews ( n = 28) were held with female Turkish, Moroccan and Surinamese Creole family carers who are looking after a close relative with dementia, and who live in The Netherlands. Qualitative analysis has been carried out, supported by the software MaxQda. Results The dominant explanations of dementia given by the female family carers interviewed are in line with what Downs et al. describe as the explanatory models ‘dementia as a normal ageing process’ and ‘dementia as a spiritual experience’. In addition, some female family carers gave explanations that were about an interplay between various factors. Turkish and Moroccan informal caregivers ascribe the causes of dementia relatively often to life events or personality traits, whereas Surinamese Creole caregivers frequently mention physical aspects, such as past dehydration. However, the explanatory model ‘dementia as a neuropsychiatric condition', which is dominant in Western cultures, was rarely expressed by the informal caregivers. The female family carers generally talked openly about the dementia with their close family, whereas particularly in the Turkish and Moroccan communities open communication within the broader communities was often hampered, e.g. by feelings of shame. Conclusions Female family carers of Turkish, Moroccan or Surinamese Creole backgrounds often consider dementia as a natural consequence of ageing, as a spiritual experience, and/or as an interplay between various factors. They feel they can talk openly about dementia within their close family, while outside the close family this is often more difficult. |
| Databáze: | OpenAIRE |
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