Surveying End-of-Life Medical Decisions in France
| Autor: | Amandine Stephan, Joachim Cohen, Alain Monnier, Sophie Pennec, Stéphane Legleye, Nicolas Brouard, Johan Bilsen |
|---|---|
| Přispěvatelé: | Public Health Sciences, Mental Health and Wellbeing research group, Family Medicine and Chronic Care, End-of-life Care Research Group |
| Jazyk: | angličtina |
| Rok vydání: | 2016 |
| Předmět: |
Operations research
Computer applications to medicine. Medical informatics R858-859.7 Sample (statistics) 030501 epidemiology 03 medical and health sciences PHYSICIANS 0302 clinical medicine DECISION_MAKING Medical technology Medicine 030212 general & internal medicine R855-855.5 EUTHANASIA Sampling frame Response rate (survey) Medical education Original Paper END_OF_LIFE Data collection Descriptive statistics MEDICINE business.industry methodology end-of-life decisions Incentive mixed-mode survey Data quality Respondent France 0305 other medical science business |
| Zdroj: | Interactive Journal of Medical Research Interactive Journal of Medical Research, Vol 5, Iss 1, p e8 (2016) |
| Popis: | BackgroundMonitoring medical decisions at the end of life has become an important issue in many societies. Built on previous European experiences, the survey and project Fin de Vie en France (“End of Life in France,” or EOLF) was conducted in 2010 to provide an overview of medical end-of-life decisions in France. ObjectiveTo describe the methodology of EOLF and evaluate the effects of design innovations on data quality. MethodsEOLF used a mixed-mode data collection strategy (paper and Internet) along with follow-up campaigns that employed various contact modes (paper and telephone), all of which were gathered from various institutions (research team, hospital, and medical authorities at the regional level). A telephone nonresponse survey was also used. Through descriptive statistics and multivariate logistic regressions, these innovations were assessed in terms of their effects on the response rate, quality of the sample, and differences between Web-based and paper questionnaires. ResultsThe participation rate was 40.0% (n=5217). The respondent sample was very close to the sampling frame. The Web-based questionnaires represented only 26.8% of the questionnaires, and the Web-based secured procedure led to limitations in data management. The follow-up campaigns had a strong effect on participation, especially for paper questionnaires. With higher participation rates (63.21% and 63.74%), the telephone follow-up and nonresponse surveys showed that only a very low proportion of physicians refused to participate because of the topic or the absence of financial incentive. A multivariate analysis showed that physicians who answered on the Internet reported less medication to hasten death, and that they more often took no medical decisions in the end-of-life process. ConclusionsVarying contact modes is a useful strategy. Using a mixed-mode design is interesting, but selection and measurement effects must be studied further in this sensitive field. |
| Databáze: | OpenAIRE |
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