Suicidality in Huntington's Disease: A Qualitative Study on Coping Styles and Support Strategies
| Autor: | Annette Hamming, Anna A.M. Hubers, Erik J. Giltay, Raymund A.C. Roos, Margaret von Faber, Rose C. van der Mast, Erik van Duijn |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2016 |
| Předmět: |
Adult
Male medicine.medical_specialty Coping (psychology) medicine.medical_treatment Poison control Suicide prevention 03 medical and health sciences Cellular and Molecular Neuroscience 0302 clinical medicine Discrimination Psychological Trinucleotide Repeats Risk Factors Adaptation Psychological medicine Psychoeducation Humans 030212 general & internal medicine Psychiatry Suicidal ideation suicide Aged Huntingtin Protein therapy business.industry Neurodegenerative diseases Human factors and ergonomics Middle Aged psychopathology Focus group Facial Expression Huntington Disease coping behaviour Female Human medicine Neurology (clinical) medicine.symptom business Cognition Disorders 030217 neurology & neurosurgery qualitative research Clinical psychology Qualitative research |
| Zdroj: | Journal of Huntington's Disease, 5(2), 185-198 Journal of Huntington's Disease |
| ISSN: | 1879-6397 |
| Popis: | BACKGROUND: Huntington's disease (HD) mutation carriers are at increased risk of suicidal ideation, suicide attempts, and completed suicide. However, research is lacking on coping strategies and treatment options that can be offered to suicidal HD mutation carriers. OBJECTIVE: This study explores how individuals with pre-motor or motor symptomatic HD cope with suicidality, how their partners support them, and their ideas and wishes regarding how relatives and healthcare professionals can help them in coping with suicidality. METHODS: This qualitative study included 11 HD mutation carriers who experienced suicidal ideation or attempted suicide and 3 of their partners. They participated in a focus group discussion or an individual in-depth interview. Two independent researchers fragmented the transcribed interviews, coded these fragments, grouped them under themes, and structured the data. RESULTS: HD study participants used four main strategies to cope with suicidality, including talking about suicidality, employing self-management activities, using medication, and discussing end-of-life wishes. Partners, relatives, and healthcare professionals can support suicidal HD mutation carriers in each of those four strategies. CONCLUSIONS: Despite the absence of a turnkey solution for suicidality in HD, healthcare professionals can play an important role in supporting suicidal HD mutation carriers by providing an opportunity to talk about suicidality, providing psychoeducation on self-management, prescribing medication, and discussing end-of-life wishes. Future HD-specific intervention studies could investigate the effect of combining these treatment strategies into one holistic approach. Language: en |
| Databáze: | OpenAIRE |
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