Familial experience of acute bacterial meningitis in children: a transversal qualitative study using interpretative phenomenological analysis
| Autor: | Léonor Fasse, Philip Gorwood, Elisabetta Scanferla |
|---|---|
| Přispěvatelé: | Clinique des maladies mentales et de l'encéphale (CMME - Service de psychiatrie), Hôpital Sainte-Anne-Université de Paris (UP), GHU Paris Psychiatrie et Neurosciences, Institut de psychiatrie et neurosciences de Paris (IPNP - U1266 Inserm), Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Paris (UP), Laboratoire de Psychopathologie et Processus de Santé (LPPS (URP_4057)), Université de Paris (UP), Département Interdisciplinaire de Soins de Support aux Patients en Onco-hématologie [Gustave Roussy] (DISSPO), Institut Gustave Roussy (IGR), Hôpital Sainte-Anne-Université Paris Cité (UPCité), Institut National de la Santé et de la Recherche Médicale (INSERM)-Université Paris Cité (UPCité), Université Paris Cité (UPCité), Martinez Rico, Clara |
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
intensive & critical care
Adult Adolescent [SDV]Life Sciences [q-bio] Disease Superordinate goals Meningitis Bacterial 03 medical and health sciences Young Adult 0302 clinical medicine 030225 pediatrics Health care Adaptation Psychological medicine Humans Family 030212 general & internal medicine Survivors Sibling Child Qualitative Research [SDV.MHEP] Life Sciences [q-bio]/Human health and pathology Interpretative phenomenological analysis business.industry Infant infectious disease/HIV General Medicine medicine.disease psychiatry [SDV] Life Sciences [q-bio] Neurology Child Preschool Medicine Female business Meningitis [SDV.MHEP]Life Sciences [q-bio]/Human health and pathology Qualitative research Clinical psychology Meaning (linguistics) |
| Zdroj: | BMJ Open BMJ Open, Vol 11, Iss 7 (2021) BMJ Open, BMJ Publishing Group, 2021, 11 (7), pp.e047465. ⟨10.1136/bmjopen-2020-047465⟩ BMJ Open, 2021, 11 (7), pp.e047465. ⟨10.1136/bmjopen-2020-047465⟩ |
| ISSN: | 2044-6055 |
| Popis: | ObjectivesTo capture the subjective experience of close family ascendants of acute bacterial meningitis survivors and to explore how they give meaning to this specific experience.DesignA qualitative study of indepth interviews using interpretative phenomenological analysis.Primary outcomeMain meaning-making processes of participants’ experience.SettingsParticipants were recruited through two associations of people affected by meningitis and their family ascendants.ParticipantsConvenience sampling of 11 women whose children or grandchildren were between 0.2 and 20 years old at the time of their meningitis diagnosis (M=4.06, SD=7.3). On average, 9.39 (SD=5.4) years had passed between the onset of illness and the interview.ResultsSix superordinate themes (meningitis disease; healthcare services and professionals; knowledge/ignorance; repercussions of the meningitis experience: ‘life afterwards’; sick child attitudes/behaviour; and sibling attitudes/behaviour) and two main meaning-making processes in relation to participants’ experience of meningitis were identified: (1) the sick child becoming a ‘hero’: comparison with other children; and (2) engaging action/attitude: finding the ‘positive’ of the traumatic experience and engaging action to improve the care system. These two processes underpin the psychological adjustment to meningitis and its consequences.ConclusionsThis study provides a unique insight into close family members’ first-hand experience with acute bacterial meningitis. Findings highlighted factors characterising the disease experience, the psychological adjustment of meningitis survivors’ families and their meaning-making processes. These findings are important for research and clinical practice, demonstrating the multidimensional impact of the disease on family ascendants, their need for professional psychological support and the importance of direct involvement of parents in identifying key aspects of care. |
| Databáze: | OpenAIRE |
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