Fostering Effective Asthma Self-Management Transfer in High-Risk Children: Gaps and Opportunities for Family Engagement

Autor: Melissa H. Bellin, Arlene M. Butz, Rachel H.F. Margolis, Jaclyn R. MacFarlane Bookman, Kathryn S. Collins, Cassia Lewis-Land, Mary E. Bollinger
Rok vydání: 2019
Předmět:
Zdroj: J Pediatr Health Care
ISSN: 0891-5245
DOI: 10.1016/j.pedhc.2019.05.004
Popis: Introduction The process of self-management knowledge, behavior, and skill development in children with asthma from families with low income is understudied. Method Fifteen mothers of children with uncontrolled asthma participated in semistructured interviews exploring the transfer of asthma self-management responsibilities from parent to child. Team members performed thematic analysis of written transcripts. Results All participants were all the biological mothers and were impoverished, with most (73%) reporting an annual family income of less than $30,000. Their children ranged from 5 to 15 years old, were African American (100%), and had uncontrolled asthma based on national guidelines. Themes showed that child asthma self-management is difficult to achieve, that the transfer of asthma responsibility from mother to child is variable, and that mothers overestimate their child's developmental capacities for independent asthma self-management and have poor understanding of what well-controlled asthma means. Discussion Ongoing assessment and tailored guidance from health care providers are critical to support the pivotal role of mothers in their child's self-management development process.
Databáze: OpenAIRE