Patients’ perceived health information needs in inflammatory arthritis: A systematic review
| Autor: | Andrew M. Briggs, Flavia M. Cicuttini, Julian D. Segan, Alicia Lu, Maheeka Seneviwickrama, Anita E. Wluka, Meher Saini, Kaye Sullivan, Louisa Chou, Kathryn Connelly |
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| Rok vydání: | 2019 |
| Předmět: |
Male
medicine.medical_specialty Inflammatory arthritis Information Seeking Behavior MEDLINE Information needs PsycINFO CINAHL Perceived health Arthritis Rheumatoid 03 medical and health sciences 0302 clinical medicine Rheumatology Surveys and Questionnaires Humans Medicine 030212 general & internal medicine Qualitative Research 030203 arthritis & rheumatology Health Services Needs and Demand Consumer Health Information business.industry medicine.disease Anesthesiology and Pain Medicine Family medicine Female business Inclusion (education) Psychosocial |
| Zdroj: | Seminars in Arthritis and Rheumatism. 48:900-910 |
| ISSN: | 0049-0172 |
| DOI: | 10.1016/j.semarthrit.2018.07.014 |
| Popis: | Objectives To identify the breadth of the literature regarding patients’ perceived health information needs related to inflammatory arthritis care. Methods A systematic scoping review of MEDLINE, EMBASE, CINAHL and PsycINFO was performed to identify relevant articles (1990 -2016) examining patients’ perceived needs relating to health information in inflammatory arthritis. Data and themes were identified and categorised and risk of bias assessed. Results Twenty nine studies (11 quantitative, 14 qualitative and 4 mixed methods) from 4121 identified articles were relevant for inclusion. Most focussed on rheumatoid arthritis. Key findings included: (1) Reasons for seeking health information often focussed on gaining ownership over their condition and facilitating self-management. (2) Demographic differences in information needs were inconsistent, but women and younger patients generally reported more needs. (3) Desired information content was broad, and included targeted and practical information covering disease treatment and psychosocial wellbeing. (4) Preferred information delivery method was consultation with a Rheumatologist; however group sessions had advantages for psychosocial issues while written information provided useful supplementation. (5) Barriers to meeting health information needs were around timely access. Conclusions Patients with inflammatory arthritis have high information needs, desiring practical and individualised information. When developing strategies to meet patients’ information needs, aligning patient expectations with delivery methods that are accessible, cost-effective and flexible may help to optimize patient outcomes. |
| Databáze: | OpenAIRE |
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