In This Together: Navigating Ethical Challenges Posed by Family Clustering during the Covid‐19 Pandemic
| Autor: | Elijah Weber, Thomas V. Cunningham, Mark J. Bliton, Nicole R. Van Buren |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Advance care planning
Health (social science) Essay education 0603 philosophy ethics and religion California 03 medical and health sciences Social support Advance Care Planning 0302 clinical medicine shared decision‐making unrepresented patients Nursing Pandemic Health care family clustering Cluster Analysis Humans Family Minority Health 030212 general & internal medicine Cluster analysis Third-Party Consent Ethics Consultation health disparities Essays Covid‐19 Family Health business.industry SARS-CoV-2 Health Policy clinical ethics COVID-19 Social Support 06 humanities and the arts General Medicine Bioethics Health Status Disparities Health equity Philosophy Issues ethics and legal aspects 060301 applied ethics Patient Care Psychology business bioethics Decision Making Shared |
| Zdroj: | The Hastings Center Report |
| ISSN: | 1552-146X 0093-0334 |
| Popis: | Harrowing stories reported in the media describe Covid‐19 ravaging through families. This essay reports professional experiences of this phenomenon, family clustering, as encountered during the pandemic's spread across Southern California. We identify three ethical challenges following from it: Family clustering impedes shared decision‐making by reducing available surrogate decision‐makers for incapacitated patients, increases the emotional burdens of surrogate decision‐makers, and exacerbates health disparities for and the suffering of people of color at increased likelihood of experiencing family clustering. We propose that, in response to these challenges, efforts in advance care planning be expanded, emotional support offered to surrogates and family members be increased, more robust state guidance be issued on ethical decision‐making for unrepresented patients, ethics consultation be increased in the setting of conflict following from family clustering dynamics, and health care professionals pay more attention to systemic and personal racial biases and inequities that affect patient care and the surrogate experience. |
| Databáze: | OpenAIRE |
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