Self-reported symptoms and patient experience: A British Acoustic Neuroma Association survey
| Autor: | Stephen J Broomfield, Gerard M. O'Donoghue |
|---|---|
| Rok vydání: | 2015 |
| Předmět: |
Adult
Male medicine.medical_specialty Hearing loss A little better Acoustic neuroma Audiology Schwannoma Tinnitus 03 medical and health sciences 0302 clinical medicine Quality of life Surveys and Questionnaires Patient experience otorhinolaryngologic diseases Humans Medicine Hearing Loss 030223 otorhinolaryngology Association (psychology) Aged business.industry Neuroma Acoustic General Medicine Middle Aged medicine.disease Quality of Life Physical therapy Female Surgery Self Report Neurology (clinical) medicine.symptom business 030217 neurology & neurosurgery |
| Zdroj: | British Journal of Neurosurgery. 30:294-301 |
| ISSN: | 1360-046X 0268-8697 |
| DOI: | 10.3109/02688697.2015.1071323 |
| Popis: | To assess patient-reported outcomes and experience of vestibular schwannoma (VS) management.Survey of members of the British Acoustic Neuroma Association (BANA).Members of the BANA were invited to complete an online survey. Questions were divided into five areas: Demographic details; symptoms at diagnosis; level of information received; treatment after-effects; and overall experience of diagnosis and/or treatment.598 (58%) BANA members completed the survey. 77.1% of respondents were aged between 41 and 70 years. Symptoms at diagnosis: hearing loss (84%), unilateral tinnitus (40%) and imbalance (51%) were commonest. Isolated tinnitus and imbalance occurred in 2% and 6%, respectively. Information received: 39% stated they were given 'just the right amount of information about all management options', and 32% 'not enough information'. Treatment after-effects: Overall quality of life was classified as 'a lot better' (11%), 'a little better' (7%), 'unchanged' (25%), 'a little worse' (38%) and 'a lot worse' (19%). 61% respondents continued in the same job. Return to social life, hobbies and sports was impaired in 65%. Overall experience: Experience of treatment was graded as 'much better than expected' (20%), 'a little better' (15%), 'about the same' (27%), 'a little worse' (22%) and 'much worse' (16%).Quality of life measures are important in assessing VS management outcomes, and will increasingly inform clinical decision-making. Further examination of how patients with VS perceive their disease, cope with illness and use social support networks may also help to inform future practice and the creation of decision analytical models. |
| Databáze: | OpenAIRE |
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