Illness narratives, dependence level and life satisfaction in post-polio syndrome

Autor: Osvaldo Jm Nascimento, Carlos Henrique Melo Reis, Antônio Marcos da Silva Catharino, Marcos Rg de Freitas, Alessandra Cardoso Pereira, Miriam Calheiros, Enrique Covarrubias Loayza, Julio Guilherme Silva, Mariana Pimentel de Mello, Valéria Camargo Silveira, Marco Orsini
Předmět:
Zdroj: Scopus-Elsevier
Popis: Objective. The purpose of this study was to investigate the lifetime illness experience of four patients with Post-Polio Syndrome (PPS). Method. The empirical contents were submitted to a categorization process containing questions referring to: (1) the acute phase of paralytic poliomyelitis and recollection of past clinical pictures and syndromes; (2) physical rehabilitation, guidance as well as care at services for the disabled; (3) adaptation to a new lifestyle; (4) living with PPS and related prejudices and misconceptions; (5) apprehensions towards the future. The level of functional independence (autonomy) was measured using the Barthel Index, a questionnaire regarding several practical motor skills. Results. We have found that the symptoms in post-polio patients increased their day-to-day level of motor disability and sometimes decreased their overall level of life satisfaction. Conclusion. Rehabilitation processes as well as counseling have a positive influence on (PPS) patients.
Databáze: OpenAIRE