Health-related quality of life in children and adolescents with sickle cell disease
| Autor: | Cindy J. Cochran, George R. Buchanan, Ethel Jernigan, Juanita Conkin Dale, Lonnie C. Roy |
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| Rok vydání: | 2009 |
| Předmět: |
Male
Pediatrics medicine.medical_specialty Adolescent Anemia Thalassemia Emotions MEDLINE Disease Anemia Sickle Cell Article Quality of life hemic and lymphatic diseases medicine Humans Child Health related quality of life business.industry Reproducibility of Results Health Services medicine.disease humanities Sickle cell anemia Pediatrics Perinatology and Child Health Quality of Life Female business Psychosocial Clinical psychology |
| Zdroj: | Journal of pediatric health care : official publication of National Association of Pediatric Nurse AssociatesPractitioners. 25(4) |
| ISSN: | 1532-656X |
| Popis: | To assess health-related quality of life (HRQOL) in children and adolescents with sickle cell disease (SCD).The PedsQL 4.0 Generic Scales, a multidimensional self-report instrument that has been shown to be valid and reliable for use in children and adolescents with chronic illness, consists of 23 items that assess physical, emotional, social, and school functioning. Questionnaires were administered to 124 children and adolescents (ages 8 to 18 years, child self-report) with SCD (100 sickle cell anemia, 24 sickle β zero thalassemia) and their parents (parent-proxy report). Summary scores for children's and parents' ratings of overall HRQOL and psychosocial health and subscale scores for physical, emotional, social, and school functioning were compared with published data for healthy children. Both summary and subscale scores for children with SCD also were compared with those of their parents.Children with SCD and their parents rated overall HRQOL and all subdomains of HRQOL lower than did healthy children and their parents (P.001). Children with SCD rated their own HRQOL significantly better than their parents did for overall HRQOL and all subdomains (P .001) except emotional functioning (P = .06).Children with SCD and their parents perceived overall HRQOL and all HRQOL subdomains to be lower than scores reported in healthy children. Therefore, successful therapeutic efforts to improve HRQOL could represent important advances in the health of children with SCD. |
| Databáze: | OpenAIRE |
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