Culture, Health, Function, and Participation among American Indian and Alaska Native Children and Youth with Disabilities: an exploratory qualitative analysis
| Autor: | Kathryn D. Lent, Molly Fuentes |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2018 |
| Předmět: |
Gerontology
Adult Male Parents 030506 rehabilitation Health Knowledge Attitudes Practice Activities of daily living Adolescent medicine.medical_treatment Psychological intervention Physical Therapy Sports Therapy and Rehabilitation Environment Article Interviews as Topic 03 medical and health sciences Young Adult 0302 clinical medicine Qualitative analysis International Classification of Functioning Disability and Health Health care medicine Humans Disabled Persons Child Qualitative Research Rehabilitation business.industry Attendance Infant Middle Aged Social engagement Alaskan Natives Self-Help Devices Social Participation Culturally Competent Care Child Preschool Indians North American Female 0305 other medical science business Psychology 030217 neurology & neurosurgery |
| Zdroj: | Arch Phys Med Rehabil |
| Popis: | Objective To investigate the influence of traditional culture on health, disability, and health care services among American Indian and Alaska Native (AI/AN) children and youth with disabilities. Design Exploratory descriptive qualitative analysis. Setting Tertiary children’s hospital. Participants A purposively sampled group (N=17) of AI/AN youth (n=4) with disability lasting at least 6 months age 8-24 years old and parents (n=13) of AI/AN children with disability lasting at least 6 months age 6 months to 17 years old. Interventions Not applicable. Main Outcome Measures Participant responses to semistructured interview questions regarding health beliefs, daily activities, participation in cultural activities, and experiences receiving or having their child receive health care and rehabilitation services. Results Three themes were identified: (1) participation in cultural activities is important for health as an AI/AN person; (2) experiences participating in cultural activities with functional differences; and (3) lack of recognition of the culturally related functional needs of AI/AN children with disabilities by rehabilitation providers. Children participated in cultural activities primarily through attendance at community-wide events. Barriers to participation in cultural activities included environmental barriers and adaptive mobility devices ill-suited to rough terrain. Participants perceived addressing functional needs related to culture, and cultural activities was not an expected part of rehabilitation services. Conclusions AI/AN children with disabilities experience barriers to participation in cultural activities, making it hard for them to achieve their definition of ideal health. Rehabilitation services have not identified or addressed these unmet culturally related functional needs. |
| Databáze: | OpenAIRE |
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