Characteristics of patients with advanced cancer preferring not to know prognosis

Autor:	van der Velden, Naomi C A, van Laarhoven, Hanneke W M, Burgers, Sjaak A, Hendriks, Lizza E L, de Vos, Filip Y F L, Dingemans, Anne-Marie C, Jansen, Joost, van Haarst, Jan-Maarten W, Dits, Joyce, Smets, Ellen Ma, Henselmans, Inge
Přispěvatelé:	Internal medicine, Graduate School, Medical Psychology, APH - Quality of Care, CCA - Cancer Treatment and Quality of Life, Oncology, Amsterdam Gastroenterology Endocrinology Metabolism, APH - Personalized Medicine, Pulmonary Medicine, Pulmonologie, RS: GROW - R3 - Innovative Cancer Diagnostics & Therapy
Jazyk:	angličtina
Rok vydání:	2022
Předmět:	Cancer Research Physician-Patient Relations Communication Neoplasm metastasis Physician–patient relations Patient Preference Disclosure Prognosis Oncology SDG 3 - Good Health and Well-being Neoplasms Genetics Cross-sectional studies Palliative care Humans Female
Zdroj:	BMC Cancer, 22(1):941. BioMed Central van der Velden, N C A, van Laarhoven, H W M, Burgers, S A, Hendriks, L E L, de Vos, F Y F L, Dingemans, A-M C, Jansen, J, van Haarst, J-M W, Dits, J, Smets, E M & Henselmans, I 2022, ' Characteristics of patients with advanced cancer preferring not to know prognosis : a multicenter survey study ', BMC Cancer, vol. 22, no. 1, 941, pp. 941 . https://doi.org/10.1186/s12885-022-09911-8 BMC cancer, 22(1):941. BioMed Central BMC Cancer, 22(1):941. BioMed Central Ltd. BMC Cancer, 22(1):941. BioMed Central Ltd
ISSN:	1471-2407
Popis:	Background For some patients with advanced cancer not knowing prognosis is essential. Yet, in an era of informed decision-making, the potential protective function of unawareness is easily overlooked. We aimed to investigate 1) the proportion of advanced cancer patients preferring not to know prognosis; 2) the reasons underlying patients’ prognostic information preference; 3) the characteristics associated with patients’ prognostic information preference; and 4) the concordance between physicians’ perceived and patients’ actual prognostic information preference. Methods This is a cross-sectional study with structured surveys (PROSPECT). Medical and thoracic oncologists included patients (n = 524), from seven Dutch hospitals, with metastatic/inoperable cancer and an expected median overall survival of ≤ 12 months. For analysis, descriptive statistics and logistic regression models were used. Results Twenty-five to 31% of patients preferred not to know a general life expectancy estimate or the 5/2/1-year mortality risk. Compared to patients preferring to know prognosis, patients preferring unawareness more often reported optimism, avoidance and inability to comprehend information as reasons for wanting limited information; and less often reported expectations of others, anxiety, autonomy and a sense of control as reasons for wanting complete information. Females (p p p Conclusions We encourage physicians to explore patients’ prognostic information preferences and the underlying reasons explicitly, enabling individually tailored communication. Future studies may investigate changes in patients’ prognostic information preferences over time and examine the impact of prognostic disclosure on patients who prefer unawareness.
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=doi_dedup___::06e06830ab84c21467a7e9dd6dc66654 https://doi.org/10.1186/s12885-022-09911-8 Zobrazit plný text záznamu Plný text ve formátu PDF Plný text ve formátu HTML
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