Identifying and prioritising unanswered research questions for people with hyperacusis: James Lind Alliance Hyperacusis Priority Setting Partnership
| Autor: | Tracey Pollard, Hilary Hodgson, Sarah Chapman, Jacqueline Sheldrake, Josephine Marriage, Nic Wray, Toto Anne Gronlund, Mike Meadows, Carolyn Farrell, Kathryn Fackrell, Peter Byrom, John S. Phillips, Helen Henshaw, David M. Baguley, Carol MacDonald, Derek J. Hoare, Veronica Kennedy, Rosie Kentish, Linda Stratmann |
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| Rok vydání: | 2019 |
| Předmět: |
Adult
Male Biomedical Research Adolescent assessment Young Adult 03 medical and health sciences 0302 clinical medicine Resource (project management) Surveys and Questionnaires medicine Humans 030212 general & internal medicine Child Aged Original Research Aged 80 and over Ear Nose and Throat/Otolaryngology Medical education research Priority setting Health Priorities business.industry Hyperacusis Stakeholder General Medicine Middle Aged United Kingdom Identification (information) Alliance General partnership Female James Lind Alliance medicine.symptom Thematic analysis business management 030217 neurology & neurosurgery |
| Zdroj: | BMJ Open |
| ISSN: | 2044-6055 |
| Popis: | ObjectiveTo determine research priorities in hyperacusis that key stakeholders agree are the most important.Design/settingA priority setting partnership using two international surveys, and a UK prioritisation workshop, adhering to the six-staged methodology outlined by the James Lind Alliance.ParticipantsPeople with lived experience of hyperacusis, parents/carers, family and friends, educational professionals and healthcare professionals who support and/or treat adults and children who experience hyperacusis, including but not limited to surgeons, audiologists, psychologists and hearing therapists.MethodsThe priority setting partnership was conducted from August 2017 to July 2018. An international identification survey asked respondents to submit any questions/uncertainties about hyperacusis. Uncertainties were categorised, refined and rephrased into representative indicative questions using thematic analysis techniques. These questions were verified as ‘unanswered’ through searches of current evidence. A second international survey asked respondents to vote for their top 10 priority questions. A shortlist of questions that represented votes from all stakeholder groups was prioritised into a top 10 at the final prioritisation workshop (UK).ResultsIn the identification survey, 312 respondents submitted 2730 uncertainties. Of those uncertainties, 593 were removed as out of scope, and the remaining were refined into 85 indicative questions. None of the indicative questions had already been answered in research. The second survey collected votes from 327 respondents, which resulted in a shortlist of 28 representative questions for the final workshop. Consensus was reached on the top 10 priorities for future research, including identifying causes and underlying mechanisms, effective management and training for healthcare professionals.ConclusionsThese priorities were identified and shaped by people with lived experience, parents/carers and healthcare professionals, and as such are an essential resource for directing future research in hyperacusis. Researchers and funders should focus on addressing these priorities. |
| Databáze: | OpenAIRE |
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