The Care-coordination Approach to Learning Lupus Self-Management: a patient navigator intervention for systemic lupus inpatients
Autor: | Viswanathan Ramakrishnan, Aissatou Ba, Clara L Dismuke-Greer, Edith M. Williams, Ashley A. White, Jim C. Oates, Trevor D. Faith |
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Jazyk: | angličtina |
Rok vydání: | 2021 |
Předmět: |
Adult
medicine.medical_specialty Adolescent medicine.medical_treatment Immunology Health literacy Medicare rehabilitation Treatment and control groups Young Adult 03 medical and health sciences 0302 clinical medicine systemic lupus erythematosus Intervention (counseling) medicine Humans Lupus Erythematosus Systemic Patient Navigation 030212 general & internal medicine Aged 030203 arthritis & rheumatology Patient Activation Measure Inpatients Rehabilitation Self-management Systemic lupus erythematosus business.industry Health services research General Medicine Middle Aged RC581-607 Symptom Flare Up medicine.disease Epidemiology and Outcomes health services research United States Physical therapy Immunologic diseases. Allergy business |
Zdroj: | Lupus Science and Medicine, Vol 8, Iss 1 (2021) Lupus Science & Medicine |
ISSN: | 2053-8790 0440-0240 |
Popis: | ObjectiveThe Care-coordination Approach to Learning Lupus Self-Management (CALLS) study was designed to improve SLE disease self-management. This study aims to assess the benefits of the intervention compared with existing lupus care.MethodsParticipants were randomly assigned to participate in 12-weekly phone sessions with the patient navigator that included structured educational content, care coordination and patient-centred support services, or a usual care control condition. Validated measures of health literacy, self-efficacy, patient activation and disease activity were collected. We used least squares means and linear mixed-effects regression models for each outcome variable to assess the changes in outcome, from baseline to postintervention and to estimate the difference in these changes between the intervention and control group.ResultsThirty participants were enrolled and 14 were randomised to the treatment group. For perceived lupus self-efficacy, there was a significant increase in mean score for the intervention group, but not for the control group. With regard to disease activity, the experimental group experienced a slight decrease in mean flare score in the previous 3 months, whereas the control group experienced a slight increase, but this finding did not reach statistical significance. Trends were similar in self-reported global disease activity, but none of the findings were significant. Health literacy and patient activation measure scores remained largely unchanged throughout the study for the two groups.ConclusionThese findings suggest that the CALLS intervention may work to improve aspects of SLE disease self-management. Future research will be needed to validate these findings long-term.Trial registration numberNCT04400240. |
Databáze: | OpenAIRE |
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