Psychological Adjustment of Parents of Children Born with Atypical Genitalia 1 Year after Genitoplasty
| Autor: | Dix P. Poppas, Blake W. Palmer, Alethea Paradis, Larry L. Mullins, Dana M. Bakula, Denise Galan, Kerlly J. Bernabé, Natalie J. Nokoff, Dominic Frimberger, Earl Y. Cheng, Bradley P. Kropp, Cortney Wolfe-Christensen, Amy B. Wisniewski, Yegappan Lakshmanan, Alexandria J. Mullins, Rebecca E.H. Ellens, Theresa Meyer, Elizabeth B. Yerkes, Kristy J. Scott Reyes, Saul P. Greenfield, Thomas F. Kolon, Allyson Fried, Lynette Gonzalez, Sabrina Meyer, Laurence S. Baskin, Paul F. Austin |
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| Jazyk: | angličtina |
| Rok vydání: | 2017 |
| Předmět: |
Adult
Male Parents medicine.medical_specialty Urologic Surgical Procedures Male Urology Decision Making Adjustment disorders Disorders of Sex Development 030232 urology & nephrology Specialty Emotional Adjustment Article 03 medical and health sciences Gynecologic Surgical Procedures Postoperative Complications 0302 clinical medicine Quality of life 030225 pediatrics Adaptation Psychological medicine Atypia Humans Sex organ Congenital adrenal hyperplasia Longitudinal Studies Postoperative Period Genitalia Psychiatry Child business.industry Infant Regret Middle Aged Plastic Surgery Procedures medicine.disease Distress Treatment Outcome Child Preschool Quality of Life Female business Stress Psychological |
| Zdroj: | J Urol |
| Popis: | PURPOSE: We examined the psychological adjustment of parents of children born with moderate to severe genital atypia 12 months after their child underwent genitoplasty. MATERIALS AND METHODS: Parents were recruited longitudinally from a multicenter collaboration of 10 pediatric hospitals with specialty care for children with disorders/differences of sex development and/or congenital adrenal hyperplasia. Parents completed measures of depressive and anxious symptoms, illness uncertainty, quality of life, posttraumatic stress and decisional regret. RESULTS: Compared to levels of distress at baseline (before genitoplasty) and 6 months after genitoplasty, data from 25 mothers and 20 fathers indicated significant improvements in all psychological distress variables. However, a subset of parents continued endorsing clinically relevant distress. Some level of decisional regret was endorsed by 28% of parents, although the specific decision that caused regret was not specified. CONCLUSIONS: Overall the majority of parents were coping well 1 year after their child underwent genitoplasty. Level of decisional regret was related to having a bachelor’s level of education, increased levels of illness uncertainty preoperatively and persistent illness uncertainty at 12 months after genitoplasty but was unrelated to postoperative complications. |
| Databáze: | OpenAIRE |
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