Quality of life of family caregivers of children with orofacial clefts in Nigeria: a mixed-method study
| Autor: | Tayo Awoyale, Kristina Wanyonyi, Adebayo T Onajole, Azeez Butali, B E Ogunnowo, Wasiu Lanre Adeyemo |
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| Rok vydání: | 2015 |
| Předmět: |
Adult
Male Pediatrics medicine.medical_specialty Adolescent Cleft Lip media_common.quotation_subject Nigeria Empathy Affect (psychology) Social issues Article Access to Information Young Adult 03 medical and health sciences 0302 clinical medicine Quality of life Professional-Family Relations Surveys and Questionnaires Humans Medicine 030212 general & internal medicine Young adult General Dentistry media_common Health professionals business.industry Family caregivers Communication Infant Newborn Infant 030206 dentistry Focus Groups Focus group Cleft Palate Caregivers Otorhinolaryngology Family medicine Quality of Life Female business |
| Zdroj: | Oral Diseases. 22:116-122 |
| ISSN: | 1354-523X |
| Popis: | Background Orofacial clefts (OFCs) are common birth defects that may impose a large burden on the health and psychosocioeconomic well-being of affected individuals and families. This study aims to identify qualitative factors that affect the quality of life (QOL) of family caregivers of children with OFCs. Methods A mixed-method study in which family caregivers of OFCs children were consecutively recruited from cleft clinics over a 3-month period. Quantitative data were analyzed using SPSS version 17 and focus group discussion by framework analysis. Results A total of 107 caregivers participated in the entire study, and 24 caregivers participated in the focus group discussions. About 50% of the children had cleft lip and palate (CLP), 28% with cleft lips only (CL) and 23.4% with cleft palate only (CP). Poor access to specific information and lack of empathy of professionals affected the quality of life and delivery of family-centered care. Conclusions To improve the quality of life of family caregivers, individual-focused counseling sessions should be organized for caregivers soon after birth. This will provide an opportunity to discuss the laid out plans for supportive care. It will also be as an avenue to address the arising social issues by health professionals and counselors. |
| Databáze: | OpenAIRE |
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