Attending to Total Pain in Juvenile Huntington Disease: A Case Report Informed by Narrative Review of the Literature

Autor:	Lindsey M. Kendrick, Amy Hellman, Denise Hudgell, Meaghann S. Weaver
Rok vydání:	2019
Předmět:	Male medicine.medical_specialty Palliative care business.industry Palliative Care Symptom burden General Medicine medicine.disease Huntington Disease Huntington's disease Juvenile Huntington Disease Humans Pain Management Medicine Narrative review Patient Comfort Child business Psychiatry
Zdroj:	Journal of Palliative Care. 34:205-207
ISSN:	2369-5293 0825-8597
DOI:	10.1177/0825859719835560
Popis:	To consider the impact of juvenile Huntington disease (JHD) from a biomedical, symptom burden, and total pain palliative care perspective.This case report was informed by a narrative review of the literature with inclusion of expert opinion from pediatric palliative care, an adult and pediatric neurologist, and a child psychiatrist. Audio-recorded qualitative interview and coauthorship with the pediatric patient's primary caregiver (his mother).The JHD impacts all domains of child and family function.Application of the concept of total pain to JHD informs and guides care for this complex, challenging condition.
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=doi_dedup___::033d513d987d1b79f55b153ebc4fa21e https://doi.org/10.1177/0825859719835560 Zobrazit plný text záznamu