Health-related quality of life and lived experiences in males and females with thoracic aortic disease and their partners

Autor: Judith A.A.E. Cuypers, Carlijn G.E. Thijssen, Johanna J.M. Takkenberg, Elisabeth M. W. J. Utens, Jolien W. Roos-Hesselink, Leontien M H Roos, Annemien E. van den Bosch, Eva Goossens, Roland R L van Kimmenade, Robert M Kauling, Lidia R. Bons, Silvy Dekker, Arjen L. Gökalp
Přispěvatelé: Cardiology, Cardiothoracic Surgery, Child and Adolescent Psychiatry / Psychology, Developmental Psychopathology (RICDE, FMG)
Jazyk: angličtina
Rok vydání: 2020
Předmět:
Male
Cardiac & Cardiovascular Systems
Vascular damage Radboud Institute for Health Sciences [Radboudumc 16]
Aorta
Thoracic
030204 cardiovascular system & hematology
Anxiety
Hospital Anxiety and Depression Scale
0302 clinical medicine
Quality of life
Cost of Illness
Risk Factors
Surveys and Questionnaires
Adaptation
Psychological
great vessels and trauma
gender
Medicine
Outpatient clinic
030212 general & internal medicine
Depression (differential diagnoses)
media_common
education.field_of_study
Depression
Middle Aged
Aortic and Vascular Disease
anxiety
MARFAN-SYNDROME
PREVALENCE
Feeling
Female
medicine.symptom
Cardiology and Cardiovascular Medicine
Life Sciences & Biomedicine
Adult
medicine.medical_specialty
media_common.quotation_subject
Population
Aortic Diseases
HOSPITAL ANXIETY
Risk Assessment
VALIDATION
03 medical and health sciences
ANEURYSM
Sex Factors
All institutes and research themes of the Radboud University Medical Center
SF-36
Humans
education
Spouses
Aged
marfans
Science & Technology
business.industry
Lived experience
aortic disease
DEPRESSION SCALE
aorta
Cross-Sectional Studies
Physical therapy
Quality of Life
Cardiovascular System & Cardiology
Human medicine
business
Stress
Psychological
Zdroj: Open Heart
Open Heart, 7, 2
Open Heart, 7(2):e001419. BMJ Publishing Group
Open Heart, 7
ISSN: 2053-3624
2398-595X
Popis: ObjectiveThoracic aortic disease (TAD) may have substantial impact on health-related quality of life (HRQOL). We described HRQOL in patients with TAD, cardiovascular screening participants and their partners; identified factors associated with HRQOL; and explored lived experiences and feelings of anxiety or depression using a mixed methods design.MethodsFor this cross-sectional study, all consecutive patients visiting the TAD outpatient clinic (2017–2019) at our centre were asked to complete three questionnaires: the Short Form 36 (SF-36), the Hospital Anxiety and Depression Scale (HADS) and the Rotterdam Disease Specific Questionnaire (RDSQ). A subsample was invited for in-depth interviews.ResultsIn total, 261 participants were included: 147 patients with TAD (thoracic aortic diameter ≥40 mm; 54 females, 36.7%), 114 screening participants (cardiovascular family screening; 71 females, 62.3%) and 66 partners. Compared with the general population, patients with TAD showed markedly lower HRQOL, whereas screening participants’ HRQOL was less impaired. Female and younger participants scored significantly lower on the SF-36 and HADS compared with male and older participants. Smaller aortic diameter was associated with better RDSQ score, and previous aortic surgery was associated with higher HADS depression scores. Furthermore, partners scored significantly lower on 2/8 SF-36 subdomains when compared with the general population. From 11 interviewees, determinants of psychological distress included coping strategies, impact on social and professional life, disease-related knowledge, state of aortic diameters and physical symptoms.ConclusionsHealthcare professionals must be aware of HRQOL impairments in patients with TAD, particularly in younger females. Moreover, attention for partners is needed. Coping strategies and communication within the family were found to be important factors influencing psychological distress, and might be valuable leads for counselling and HRQOL improvement in this population.
Databáze: OpenAIRE
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