Health-Related Quality of Life and Distress of Parents of Children With Avoidant Restrictive Food Intake Disorder
| Autor: | Liesbeth van der Sluijs Veer, Hilde Krom, Marc A. Benninga, Angelika Kindermann, Lotte Haverman, Hedy A. van Oers, Suzanne M.C. van Zundert, Marie-Anne G.M. Otten |
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| Přispěvatelé: | Graduate School, Amsterdam Gastroenterology Endocrinology Metabolism, Amsterdam Reproduction & Development (AR&D), Paediatric Psychosocial Care, APH - Mental Health, APH - Methodology, Paediatric Gastroenterology |
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Adult
Male Parents Peer support Avoidant/restrictive food intake disorder Feeding and Eating Disorders 03 medical and health sciences 0302 clinical medicine Quality of life 030225 pediatrics Surveys and Questionnaires Medicine Distress Thermometer Humans Child Health related quality of life Response rate (survey) Avoidant Restrictive Food Intake Disorder business.industry Gastroenterology Infant medicine.disease humanities Distress Cross-Sectional Studies Pediatrics Perinatology and Child Health Quality of Life 030211 gastroenterology & hepatology Female business Cohort study Clinical psychology |
| Zdroj: | Journal of pediatric gastroenterology and nutrition, 73(1), 115-124. Lippincott Williams and Wilkins |
| ISSN: | 0277-2116 |
| Popis: | OBJECTIVES: Health-related quality of life (HRQOL) of children with avoidant restrictive food intake disorder (ARFID) is impaired. AIM: To measure HRQOL and distress of parents of children with ARFID. METHODS: Cross-sectional cohort study. Parents of children with ARFID, visiting our multidisciplinary feeding team, completed questionnaires on the online Quality of Life in Clinical Practice portal; the Questionnaire for Adult's Health Related Quality of Life to assess parental HRQOL and the Distress Thermometer for Parents. Reference groups of parents of healthy (HC) and chronically ill children (CIC) were used. RESULTS: Eighty-five mothers and 62 fathers of 89 children with ARFID (58% female, median age 1.9 years) were included (response rate 68%). No differences were found regarding HRQOL in 11 of 12 domains between parents of children with ARFID and HC. Mothers of children with ARFID reported significantly higher HRQOL regarding pain and fathers a significantly lower HRQOL on depressive emotions compared to HC. No differences were found in overall and clinical distress scores between parents of children with ARFID and HC/CIC. Mothers of children with ARFID had significantly higher distress scores regarding cognitive problems compared to HC and parenting problems in children |
| Databáze: | OpenAIRE |
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