Caring for Parents With Neurodegenerative Disease
| Autor: | Dana D. Hines, Barbara Habermann, Linda Lindsey Davis |
|---|---|
| Rok vydání: | 2013 |
| Předmět: |
Male
medicine.medical_specialty Leadership and Management media_common.quotation_subject MEDLINE Nursing Methodology Research Disease Assessment and Diagnosis Article law.invention Randomized controlled trial Alzheimer Disease law Intervention (counseling) medicine Humans Longitudinal Studies Parent-Child Relations Psychiatry Qualitative Research media_common Aged 80 and over Advanced and Specialized Nursing business.industry Parkinson Disease Middle Aged LPN and LVN medicine.disease Caregivers Feeling Content analysis Tape Recording Adult Children Female Alzheimer's disease business Stress Psychological Clinical psychology Qualitative research |
| Zdroj: | Clinical Nurse Specialist. 27:182-187 |
| ISSN: | 0887-6274 |
| Popis: | Purpose/objective The objective of this study was to explore the positive aspects experienced by adult children in providing care to their parent who has either Parkinson's or Alzheimer's disease. Design A qualitative descriptive approach was used to analyze audiotaped in-depth semistructured interviews that were conducted with 34 adult children who were primary caregivers as part of a larger randomized clinical trial. Setting Individual interviews were conducted by trained research assistants in the caregiver's home. Sample Thirty-four adult children caregivers who were primary caregivers for their respective 34 parents. Seventy-six percent (n = 26) of the caregivers were caring for a parent with Alzheimer's disease. Twenty-four percent (n = 8) were caring for a parent with Parkinson's disease. Eighty-two percent were adult daughters. Mean age of the caregiver was 52 years, and the mean age of the parent was 81 years. Fifty-three percent of caregivers were white, and 47% were black. Data analysis A conventional content analysis was performed to summarize themes. Findings Results indicated that most caregivers had positive experiences. Three relationship-centered themes were identified: spending and enjoying time together, appreciating each other and becoming closer, and giving back care. A small number of caregivers (n = 6) could not identify positive experiences. Conclusion/implications Caregivers who had positive experiences in caregiving expressed fewer feelings of being overwhelmed or distressed by their situations. Further study is needed on caregivers who do not experience positive aspects in caring for a parent, and these caregivers potentially may be a group that warrants further intervention by advanced practice nurses. |
| Databáze: | OpenAIRE |
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