Ankle foot orthoses for people with Charcot Marie Tooth disease – views of users and orthotists on important aspects of use
| Autor: | Margaret Phillips, Kathryn Radford, Adrian J Wills |
|---|---|
| Rok vydání: | 2011 |
| Předmět: |
Adult
Male Health Knowledge Attitudes Practice Orthotic Devices medicine.medical_specialty Activities of daily living Biomedical Engineering Physical Therapy Sports Therapy and Rehabilitation Disability Evaluation Speech and Hearing Patient satisfaction Physical medicine and rehabilitation Charcot-Marie-Tooth Disease Activities of Daily Living Nominal group technique Health Status Indicators Humans Medicine Orthopedics and Sports Medicine Qualitative Research Aged Foot business.industry Rehabilitation Middle Aged Orthotic device medicine.anatomical_structure Patient Satisfaction Tape Recording Physical therapy Female Clinical Competence Ankle Thematic analysis business Foot (unit) Qualitative research |
| Zdroj: | Disability and Rehabilitation: Assistive Technology. 6:491-499 |
| ISSN: | 1748-3115 1748-3107 |
| DOI: | 10.3109/17483107.2010.549899 |
| Popis: | To explore important aspects of the benefits, important characteristics, barriers to use and disadvantages of using ankle foot orthoses (AFOs) as seen by people with Charcot Marie Tooth disease (CMT) and the orthotists who will fit and supply them.This qualitative study used the nominal group technique and individual semi-structured interviews, according to participant preference and ability to travel. Propositions were put to 15 participants (eight females) with CMT regarding benefits, disadvantages, barriers to use and important characteristics of ankle foot orthoses AFOs and regarding benefits and disadvantages to seven orthotists. Priorities in these areas were ranked and a thematic analysis of the free text was made separately by two observers and a joint decision made of final themes.Fifteen people (eight females) with CMT and seven orthotists participated. Users' themes concerned functional mobility walking, pain/discomfort, choice of AFOs and associated footwear, custom made design, use in practical situations and support for foot and ankle. They noted that AFOs improved walking, but practical aspects of use and provision, as well as consideration of cosmetic aspects, were frequently problematic. Orthotists had similar themes, but with a difference in emphasis, that included prevention of future complications, education regarding device limitations and craftsmanship as a further theme.Users understood the potential benefits of AFOs and could identify disadvantages which might be remedied, but were frustrated by the difficulties in translating this into practice. Further refinement of current orthoses and delivery of orthotic services may assist in addressing these issues. |
| Databáze: | OpenAIRE |
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