Maternal and Child Health Bureau's Autism Research Program
| Autor: | Jessica DiBari, Romuladus E. Azuine, Michael D. Kogan, Laura Kavanagh, Deborah E. Linares, Hae Young Park, Lauren Raskin Ramos, Imelda Rocha |
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| Rok vydání: | 2020 |
| Předmět: |
Strategic planning
Program evaluation Medical education Research program Quality management Biomedical Research Maternal-Child Health Services business.industry Psychological intervention United States Health Resources and Services Administration medicine.disease United States 03 medical and health sciences Intervention (law) Underserved Population 0302 clinical medicine 030225 pediatrics Pediatrics Perinatology and Child Health Medicine Autism Humans Autistic Disorder business Child Program Evaluation |
| Zdroj: | Pediatrics. 145(Suppl 1) |
| ISSN: | 1098-4275 |
| Popis: | OBJECTIVES: To provide an overview and quantitatively demonstrate the reach of the Health Resources and Services Administration’s Maternal and Child Health Bureau autism research program. METHODS: We reviewed program reports and internal data from 59 autism research grantees. The US federal Interagency Autism Coordinating Committee’s strategic plan questions were used as a framework to highlight the contributions of the autism research program in advancing the field. RESULTS: The autism research program grantees advance research in several ways. Grantees have strengthened the evidence for autism interventions by conducting 89 studies at 79 distinct research sites. A total of 212 708 participants have enrolled in autism research program studies and 361 researchers have contributed to furthering autism research. The program addresses topics that align with the majority of the Interagency Autism Coordinating Committee’s priority topic areas, including advancements in treatments and interventions, services and supports, and identifying risk factors. Grantee products include 387 peer-reviewed publications, 19 tools, and 13 practice guidelines for improving care and intervention practices. CONCLUSIONS: The autism research program has contributed to medical advances in research, leveraged innovative training platforms to provide specialized training, and provided access to health services through research-based screening and diagnostic procedures. Autism research program studies have contributed to the development of evidence-based practice guidelines, informed policy guidelines, and quality improvement efforts to bolster advancements in the field. Although disparities still exist, the Health Resources and Services Administration’s Maternal and Child Health Bureau can reduce gaps in screening and diagnosis by targeting interventions to underserved populations including minority and rural communities. |
| Databáze: | OpenAIRE |
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