Assisting persons with advanced amyotrophic lateral sclerosis in their leisure engagement and communication needs with a basic technology-aided program
| Autor: | Valeria Zullo, Maria De Caro, Mark F. O’Reilly, Gabriele Ferlisi, Simona Schirone, Nadia Zonno, Floriana Denitto, Nirbhay N. Singh, Jeff Sigafoos, Giulio E. Lancioni, Isabella Laura Simone |
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| Rok vydání: | 2015 |
| Předmět: |
Male
medicine.medical_specialty Communication Aids for Disabled Eye Movements Isolation (health care) medicine.medical_treatment Applied psychology Physical Therapy Sports Therapy and Rehabilitation Leisure Activities Resource (project management) Intervention (counseling) medicine Humans Session (computer science) Amyotrophic lateral sclerosis Aged Health Services Needs and Demand Text Messaging Rehabilitation Communication Amyotrophic Lateral Sclerosis Middle Aged medicine.disease Preference Brain-Computer Interfaces Physical therapy Female Neurology (clinical) Psychology Music Photic Stimulation |
| Zdroj: | NeuroRehabilitation. 36:355-365 |
| ISSN: | 1878-6448 1053-8135 |
| Popis: | Background Eye-tracking communication devices and brain-computer interfaces are the two resources available to help people with advanced amyotrophic lateral sclerosis (ALS) avoid isolation and passivity. Objective This study was aimed at assessing a technology-aided program (i.e., a third possible resource) for five patients with advanced ALS who needed support for communication and leisure activities. Methods The participants were exposed to baseline and intervention conditions. The technology-aided program, which was used during the intervention, (a) included the communication and leisure options that each participant considered important for him or her (e.g., music, videos, statements/requests, and text messaging) and (b) allowed the participant to access those options with minimal responses (e.g., finger movement or eyelid closure) monitored via microswitches. Results The participants started leisure and communication engagement independently only during the intervention (i.e., when the program was used). The mean percentages of session time spent in those forms of engagement were between about 60 and 80. Preference checks and brief interviews indicated that participants and families liked the program. Conclusions The program might be viewed as an additional approach/resource for patients with advanced ALS. |
| Databáze: | OpenAIRE |
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