Validation of the Spanish, Portuguese and French versions of the Lupus Damage Index questionnaire: data from North and South America, Spain and Portugal
| Autor: | Ann E. Clarke, Antonio Iglesias-Gamarra, Sasha Bernatsky, Maria José Santos, I. Navarro, Ricardo Silvariño, Silvana Gentiletti, María H Esteva-Spinetti, M. Portela, Guillermo A. Berbotto, Luis M. Vilá, Luis Alberto Ramírez, Jigna Liu, J. Romero-Diaz, Samuel Katsuyuki Shinjo, Paula I. Burgos, Ana Catarina Duarte, M A García, Jorge Sánchez-Guerrero, E. Velozo, Graciela S. Alarcón, Michael H. Weisman, A. W S Souza, José Fernando Molina, Juan Carlos Marcos, Verónica Saurit, Eduardo Acevedo, Paul R. Fortin, I. G. De La Torre, Eduardo Ferreira Borba, Frederick Wolfe, Elizabeth W. Karlson, Hugo R. Scherbarth, Oscar Neira, Sergio Duran-Barragan, Claudia Diniz Lopes Marques, M I Segami, L. Onetti, Jaime Calvo-Alén, Jorge Manni, Karen H. Costenbader, B A Pons-Estel, Emilio B. Gonzalez, Luis J. Catoggio, Eloisa Bonfa, Jose Maria Roldan |
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| Rok vydání: | 2009 |
| Předmět: |
Adult
medicine.medical_specialty Pediatrics Index (economics) MEDLINE Severity of Illness Index Article Rheumatology Surveys and Questionnaires Severity of illness medicine Humans Lupus Erythematosus Systemic Language Systemic lupus erythematosus Lupus erythematosus Portugal Systemic lupus business.industry Reproducibility of Results South America medicine.disease Health Surveys language.human_language Questionnaire data Spain Family medicine North America language Female Portuguese business |
| Zdroj: | Lupus. 18:1033-1052 |
| ISSN: | 1477-0962 0961-2033 |
| DOI: | 10.1177/0961203309105590 |
| Popis: | We have previously developed and validated a self-administered questionnaire, modelled after the Systemic Lupus International Collaborating Clinics Damage Index (SDI), the Lupus Damage Index Questionnaire (LDIQ), which may allow the ascertainment of this construct in systemic lupus erythematosus (SLE) patients followed in the community and thus expand observations made about damage. We have now translated, back-translated and adapted the LDIQ to Spanish, Portuguese and French and applied it to patients followed at academic and non-academic centres in North and South America, Portugal and Spain while their physicians scored the SDI. A total of 887 patients (659 Spanish-speaking, 140 Portuguese-speaking and 80 French-speaking patients) and 40 physicians participated. Overall, patients scored all LDIQ versions higher than their physicians (total score and all domains). Infrequent manifestations had less optimal clinimetric properties but overall agreement was more than 95% for the majority of items. Higher correlations were observed among the Spanish-speaking patients than the Portuguese-speaking and French-speaking patients; further adjustments may be needed before the Portuguese and French versions of the LDIQ are applied in community-based studies. The relationship between the LDIQ and other outcome parameters is currently being investigated in a different patient sample. |
| Databáze: | OpenAIRE |
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