'What if this is my chance to save my life?' A semistructured interview study on the motives and experiences of end-stage renal disease patients who engaged in public solicitation of a living kidney donor
| Autor: | Michiel G. H. Betjes, Willem Weimar, Willij C. Zuidema, Mathilde C. Pronk, Emma K. Massey, Dorthe Slaats, Frank J M F Dor, Jacqueline van de Wetering, Medard Hilhorst |
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| Přispěvatelé: | Internal Medicine, Public Health, Surgery |
| Rok vydání: | 2017 |
| Předmět: |
Adult
Male Media strategy media_common.quotation_subject education 030232 urology & nephrology 030230 surgery End stage renal disease 03 medical and health sciences 0302 clinical medicine Living Donors Humans Medicine Social media Organ donation Public disclosure Aged media_common Transplantation business.industry Middle Aged Kidney Transplantation Feeling Donation Kidney Failure Chronic Female business Social psychology Medical ethics |
| Zdroj: | Transplant International, 31(3), 318-331. Wiley-Blackwell Publishing Ltd |
| ISSN: | 0934-0874 |
| DOI: | 10.1111/tri.13095 |
| Popis: | The increase in patients using public solicitation (PS) to find a living kidney donor has generated a debate about the ethical complexities of PS. To investigate why patients engaged in PS and what they experienced during PS, we conducted semistructured interviews with 20 Dutch patients with end-stage renal disease who had publicly solicited a living donor. Transcripts were thematically analyzed. We identified ten themes on patients' considerations preceding PS: cautiousness in discussing living donation within social network; reluctance to accept a kidney from loved ones; rejection/withdrawal of related donor candidates; moral objections to paid donation; the ease of social media; encouraged by others; ends justifying the means; despair and urge to take action; public disclosure of vulnerability; fear of being (perceived to be) selfish. We identified nine themes on patients' experiences: positive emotions and support generated by action; genuine and ulterior motives for donation; patients acting as educators and screeners; time- and energy-consuming process; emotionally taxing process; positive interactions with donor candidates; feeling of dependency and obligation; limited cooperation from health professionals; demands a proactive attitude and media strategy. These results can inform and complement (existing) policies on PS and provide content for education of patients who are considering PS. |
| Databáze: | OpenAIRE |
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