Resource Utilization and Quality of Life Associated with Congenital Ichthyoses

Autor: Loebat Kamalpour, Bryan Gammon, Kuang-Ho Chen, Michelle Pavlis, Emir Veledar, F.A.A.P. Zakiya P. Rice M.D., Suephy C. Chen
Rok vydání: 2011
Předmět:
Zdroj: Pediatric Dermatology. 28:512-518
ISSN: 0736-8046
DOI: 10.1111/j.1525-1470.2011.01432.x
Popis: We explored resource utilization (ResUtil) and quality of life (QOL) associated with congenital ichthyoses (CI). Subjects completed an online survey related to clinical severity, demographics, ResUtil, and QOL as measured according to the Dermatology Life Quality Index (DLQI). Validated Likert scales were used to evaluate severity of hyperkeratosis, erythema, and alopecia. ResUtil was determined according to time spent daily treating CI symptoms (TimeTx) and number of ichthyosis-related dermatology visits (DermVisits) per year. We used linear regression to investigate predictors of a transformed DLQI (sqrtDLQI) and logistic regression for ResUtil. Of 235 subjects, 60.2% were female, 83.8% were Caucasian, 42.3% had a family history (FamHx) of CI, and the mean age was 28.7 years (SD 20.3). Predictors for worse QOL were hyperkeratosis severity (β = 0.27, p
Databáze: OpenAIRE