'Tears are also included' - women’s experience of treatment for painful endometriosis at a pain clinic
| Autor: | Christer Svensén, Andrea Hållstam, Britt-Marie Stålnacke, Monika Löfgren |
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| Rok vydání: | 2016 |
| Předmět: | |
| Zdroj: | Scandinavian Journal of Pain. 12:119-120 |
| ISSN: | 1877-8879 1877-8860 |
| DOI: | 10.1016/j.sjpain.2016.05.011 |
| Popis: | Aims To explore how women perceive and are affected by treatment for painful endometriosis. Method Qualitative methodology with emergent design was used. Sixteen semi-structured interviews (including 3 follow-ups) with 13 women (age 20–47) treated at a pain clinic, were analysed with Grounded Theory. Results A preliminary model describes how women experience treatment for painful endometriosis and its consequences in one core category and three categories. The core category; Surviving painful endometriosis, described the women’s promoting strategies like Knowledge, Adaption and Planning, and inhibiting reactions as Anxiety and Resignation. The three interacting categories; Woman with painful endometriosis, included experiences of “The self” and “The body”. “The environment/significant others” described the environments’ support. Missed opportunities were described as a lack of participation in important life areas; “Social life”, “Career” and “Descendants”. “New possibilities” were experienced when pain disappeared or could be controlled. Dependent on health care included the experiences of “Treatments” from helpful to harmful and “Encounters with health care” from empowering to humiliating. Conclusions The suffering of women when exposed to painful endometriosis can lead to missed opportunities in several important areas of life. Hormonal and symptomatic treatments, as well as positive encounters of health care are important for the women’s possibility to develop working surviving strategies. |
| Databáze: | OpenAIRE |
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