Treatment of children with haemophilia in Europe: a survey of 20 centres in 16 countries
| Autor: | K. Kurnik-Auberger, Ségolène Claeyssens, A. Glomstein, C. Van Geet, Owen P. Smith, Wolfgang Muntean, F. Hill, L. Rosado, E Scheibel, M. Siimes, Ian Hann, P Petrini, W. Kreuz, Hervé Chambost, Rolf Ljung, G. Mancuso, J. M. Tusell, Rainer Kobelt, S. Aronis-Vournas, M. van den Berg |
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| Rok vydání: | 2000 |
| Předmět: |
Pediatrics
medicine.medical_specialty business.industry Haemophilia A Central venous line Hematology General Medicine Newly diagnosed 030204 cardiovascular system & hematology medicine.disease Haemophilia 3. Good health 03 medical and health sciences 0302 clinical medicine Disease severity medicine Haemophilia B Severe haemophilia A Home treatment business Genetics (clinical) 030215 immunology |
| Zdroj: | Haemophilia. 6:619-624 |
| ISSN: | 1351-8216 |
| DOI: | 10.1046/j.1365-2516.2000.00427.x |
| Popis: | A survey was made of the current status of treatment of haemophilic boys at 20 centres in 16 European countries and includes approximately 1500 of the estimated 6500 haemophiliacs in the participating countries. Many mild haemophiliacs are not seen, or seen infrequently, at haemophilia centres and this requires study. Nine of 18 centres provide continuous prophylaxis to 80-100% of their patients, five centres provide it to 55-80% and the remaining four centres to 15-40% of the boys. The median dose given was 6240 U kg-1 year-1 (range 3120-7800). Four centres administered only recombinant concentrates to children with severe haemophilia A, while seven centres administered recombinant concentrates to 75-90% and the remaining centres to less than 50% of the boys (two centres |
| Databáze: | OpenAIRE |
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